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Hi, I have just been diagnosed with CML following blood tests for a completely different issue. I am only 58, fit and healthy and have always looked after myself so completely in shock. As we had a holiday booked I am due to start Imatinib in ten days...
Hi My husband is diagnosed with CML recently. He was started on hydroxycarbamide to lower WBC count in blood last month. After 2 weeks he started having pain and stiffness in his left knee joint. Now he is severe pain all the time. He struggles to walk...
Hi, new to this site, my 16 year old son got diagnosed with CML yesterday, I was just wondering if anyone else of the same age has had the same diagnosis? We were told that is very rare in his age group to have CML, we are going to see a specialist on...
Good day. My name is Yurii, I'm from Ukraine. I was diagnosed with CML in 2016. I started taking imatinib, unfortunately in 2020, there was no response to this drug, blasts appeared. I started taking nilotinib, my condition improved. Please tell us...
Hi I was diagnosed just over 3 months ago. I thought I was doing well up until recently as I hadn’t noticed any side effects. In recent weeks I have seen my weight increase and have pockets of fluid under my eyes. Just this weekend my eyes have also...
Hello all! My name is Paul and I am recently diagnosed with Chronic Myeloid Leukaemia. I am coping well with the initial treatment and am grateful to have few symptoms of the disease and no side-effects from the medication. However, I have other stresses...
Been on imatinib for 7 months and I’ve had this uncomfortable mouth which is dry, sore and have a metallic taste. anybody had these side effects
Hi I'm Malcolm, my wife has been diagnosed with CMML. Her specialist has started her on injections, 1 a week, and capsules 2 x once a day. I'm looking for help understanding CMML. I Can not find any relevant info, on longevity, life expectation...
Hi already been on imatihib for 8 days and been told to come off it x I had water retention and my white bloods cells gone way to low x feeling low and wonder if this has happened to any one else x not on any treatment at moment x
Happy new year to everyone hope this new year we will see the light at the end of the tunnel stay safe and blessed TF
