Partner diagnosed with CMML

Hi I'm Malcolm, my wife has been diagnosed with CMML.

Her specialist has started her on injections, 1 a week, and capsules 2 x once a day.

I'm looking for help understanding CMML. 

I Can not find any relevant info, on longevity, life expectation, she's 63 I'm 68, what can I do to help her live longer?

Thanks for any words.

  • Hi  and welcome to this corner of the Community although always sorry to see folks joining us. I am Mike and I help out around our various blood cancer groups.

    I don’t have CMML but was diagnosed in 1999 with a rare, incurable but treatable type of Non Hodgkin's Lymphoma Stage 4a so although my blood cancer ‘type’ is different I know this journey rather well.

    Lets look for any group members to pick up on your post. You can also look through the various posts (hit the main group name and scroll down) and as always you can hit reply and ask some questions and see if the member is looking in. You can also put CMML into the search tool Mag near the top and see the older posts.

    You will find the best information about CMML by using the Leukaemia Care Website www.leukaemiacare.org.uk

    The Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 or via web chat. This service provides cancer information, emotional support, benefits and financial guidance or just a listening ear.

    Talking to people face to face can indeed help a lot but during these strange times it’s not that available but do check to see if you have any Local Macmillan Support in your area has opened up. Do also check out for a local Maggie's Centre in your area.

    Always around to help more or just to chat.

    Mike - Thehighlander

    It always seems impossible until its done - Nelson Mandela

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  • Hi, 

    The best thing I can recommend is to always be there. Enjoy the good days and cope with the bad ones.