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Hello, My sweet 2-year-old boy just got diagnosed with Wilms tumor. I’m absolutely shattered, devastated, and terrified. He started chemo on Friday but is running a fever again (he had fevers before the diagnosis too, I wonder if it could be the tumor...
Good morning, im Kim im 35 & recently been diagnosed with a rare childhood cancer. Rhabdomyosarcoma - they have no idea how this has happened. Been removed & about to start preventive treatment. Has anyone got some advice or tips. I would appreciate it...
Hi, I have had devastating news today that my 16 year old nephew has this cancer and has been given a terminal diagnosis. I know it’s very rare in a child and feel that due to being so young some effort should be made in seeing if we can get a second...
Hi I'm Rachel, my son has just been diagnosed with Wilms Tumor - kidney cancer. He started treatment on Thursday and we are already back in hospital . Just wanted to say hi to any other parents of children with Wilms and children with cancer and autism...
Hello I’m new to the group. Last April my then 10 year old was diagnosed with hogskins lymphoma- our worlds turned upside down overnight after 5 months of chemotherapy in October 2023 the scan showed clarity and his consultant said no more treatment was...
Hi everyone, We’ve launched our annual survey for 2024! We want to hear what you think about the Online Community. The survey should take around 15 minutes to complete. The survey is anonymous. Please complete our survey here. This survey is designed...
Has anyone any experiences of gastro paed clinic my child goes this week and we don’t no why we go here and what happens
I have inherited bowel fap cancer gene and had bowel surgery over 30 years my 15 year old has it as well and had scope test two years ago and was good results next week she been referrred to out patients in Belfast I presume the plan is to get her...
Hi everyone, We’ve launched our annual survey for 2022! We want to hear what you think about the Online Community. The survey should take around 15 minutes to complete. The survey is anonymous. Please complete our survey here. This survey is designed...
Hello My husband and I received the devastating news last weekend that our 8 month old son has a neuroblastoma. We are in pieces and struggling to live day by day. Our son is going through numerous tests to determine the stage but it's agonisingly...
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