Good morning, im Kim im 35 & recently been diagnosed with a rare childhood cancer. Rhabdomyosarcoma - they have no idea how this has happened. Been removed & about to start preventive treatment. Has anyone got some advice or tips. I would appreciate it xxx
Hi Kim35 and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I hadn't heard of rhabdomyosarcoma before so had to look it up and see that it's a rare form of soft tissue sarcoma.
I hope you don't mind me suggesting that you also join and post your message in the soft tissue sarcoma group as you should find other people with that type of cancer there.
To join, just click on the link I've created and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
It would be great if you could put something about your diagnosis and treatment to date into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
