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Hi All Hoping to find someone who’s had a similar diagnosis and any advice. Having had bilateral BC in 2015 aged 46 and lumpectomy chemo and radio plus tamoxifen in November I found a rash and inflammation in my left breast and after delayed mistaken...
Hi, new diagnosis, no pain, no symptoms, just found randomly through routine blood test and subsequent ultrasound. Now on hormone treatment and bone injections. Was told 6-12 months if didn’t take any treatment. Bit of a shock. But can’t get a handle...
Hello everyone. I am planning a holiday abroad for the first time in 25 years. Not too sure where to start and have heard some terrible horror stories about insurance and the cost. The cost is worrying me as I really want to go but kind of expecting...
I’ve posted this on BCN. Members of my support group have received letters telling them to refrigerate Ribociclib…..we are with the same hospital but I haven’t received a letter yet. Does anyone know more.
Hello All I’ve recently started a treatment plan of Ribociclib & Letrozole and am on day 12 of the Ribo tablets. Up until now I’ve been doing ok and not having bad side effects, that is until today ! I’m guessing they build up in the system, but today...
I was diagnosed with breast when I was 42, had chemotherapy, radiotherapy and lumpectomy. Went to doctors this year in April and diagnosed with secondary breast cancer in my lungs, bones and brain. Had 6 rounds of docetaxel, phesgo and bone strengthener...
I was fast tracked by my GP over three months ago with very high ALP and CA 15 3 markers. Bone scans found extensive bone abnormalities in femur pelvis and lumbar region with concerns for malignancy. I had invasive breast cancer 13 years ago with some...
Hi I'm new to this group, not sure what to say really. I have recently been diagnosed with secondary breast cancer in my bones and so far have had various scans ct mri and ultra sound and am now waiting for another mri to have a better look of my spine...
Following a de novo diagnosis of bone only mets, I completed two cycles of Ribociclib and Letrozole. However after break week between C2 and C3 my ALT levels rose to 140, then 200 after a second week off and today 490 after a third week’s break. Anyone...
Hi everyone I was diagnosed with metaplastic breast cancer last year, I had 10 rounds of chemotherapy which made the lump grow, followed by a masactomy and radiotherapy then I took capocatapine for 6 rounds. I thought I was cured as they got all the tumour...
