Secondary breast cancer in the bones

Hi 621920626e and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

I’m Anne, one of the Community Champions here on the Online Community and, although I'm not a member of this group, I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.

While you're waiting for replies, it would be great if you could put something about your diagnosis and proposed treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

Hi, I was diagnosed June 2024 with secondary in my spine, i had horrendous back pain the early part of the year, I also then found a lump in my boob about a month before, I was sent for a biopsy and also CT scan that same weekend, then I had the dreaded call.  I was in total shock to be told I had breast and secondary spine cancer 

I was sent for a blast of radiotherapy on one of the lesions on my spine, this worked amazingly well and I am now able to do most things with ease, I do get a few twinges when I overdo it but nothing at all like the pain in the beginning 

I am on Letrozole (a hormone blocker), Abemaciclib and a bone strengthening injection and I am doing really well, I have been back at work since December and apart from getting tired I am fine.  I am sure you will find once you are having treatment and you know you plan you will start to feel better and they will give/do something to ease your pain

let us know how you get on once all the scans and appointments are done 

good luck and stay positive xx

Thankyou for the advice have just done that 

My husband had prostate cancer and by the time they found it he had a spine tumour which they removed very quickly gave him medication to cope and he was then pain free. depends where it is and the size what they can do be patient they will get it right

Thankyou you so much you have made me feel a little bit better about things x

I will thankyou

Hi there.  I had breast cancer 12 years ago and I was diagnosed with secondary breast cancer in September last year.  I have bad back and hip ache.  I find that tramadol works for me and I have cyclizine as well for the nausea.  I have slow release morphine and liquid morphine as well but this makes me constipated.  I take a morphine with the tramadol some nights when pain is really bad.  Oncologist says that this is okay.  I try and just stick to the tramadol.  I also find that walking helps and it eases the pain.  It is worse if I sit down for long.  I also have a back brace to wear which oncologist prescribed for me.  I also had radiotherapy to spine and this also helped.  I hope that your pain eases for you.  What treatment are you going on?  I am on Ribociclib, exemastane and denosumab injections.  Big hugs.

Lee x

Hi i haven't started treatment yet   but just take liquid morphine for the pain along with paracetamol not sure exactly what treatment only that it will be radiology I have had 1st appointment today and will also be having bone injections  and chemotherapy x

Nite. Hope you sleep wellx

Nite hope you sleep well  x