Hi Everyone,
I have been on Capecitabine oral chemotherapy tablets a year last month. I’ve found the following brand cream to be good: Udderly Smooth Cream with 10% urea. The chemo nurse gave me a sample to try.
There is also Udderly Smooth Cream with 20% urea which I bought online ( Amazon). It is expensive £21:99, though worth it as a little goes a long way.
Judith xx
Well that gives me hope! I've done 4minths on cape. I use the udderly cream too but am already suffering the effects on my hands and feet
I'm reading your posts re capecitabine I'm due to start taking it this week after 18 weekly chemo if paclitaxel didn't work How did you find it in early days?
and
Hi I was on Capecitabine for 20months, that is 2 weeks of tablets & 7 days break between cycles. Capecitabine was my first chemo and suited me well, this was commented on by Chemo nurses and Oncologist, when examining my feet and hands.
Fortunately, I was on Capecitabine tablets longer than the average for Secondary Breast Cancer, which is about a year ( according to Onc), before the body build up a resistance.
Initially, I was on 4 tablets a day, but the side effects caused fatigue and sore red cracked feet, so the dose was reduced to 3 per day and that was fine.
Next I developed blood clots in the lungs. Apparently 1 in 10 people with cancer/ being treated with chemo can develop either DVT or clots in the lungs. The symptom prior to that diagnosis was for me a shortage of breath, especially going uphill. So following an x ray of lungs and CT scan I was placed on blood thinners.
This consisted of daily stomach injections ( Tinzaparin) at the GP surgery M-F and district nurse at weekends. I Hate needles ... Briefly tried blood thinner tablets but the side effects were worse than the injections!!!
My last scan showed that the Cape had finally ceased
being effective, so stopped that chemo and started Ribociclib tablets November 2019.
My Oncologist also requested I cease having Tinzaparin injections as lungs were now clear.
My new regime currently involves 3 Ribociclib tablets daily for 21 days, and a seven days break between cycles. At the start of this treatment I had an ECG and injection of Fulvestrant in the bottom, each side fortnightly.
Now I will be having my bloods / ECG checked monthly by a Nurse employed by the company that manufactures Ribociclib who does home visits to take pressure off the Oncology Dept.
Meanwhile, I visit the Oncology Centre once a month to receive the Fulvestrant injections and collect the next round of Ribociclib tablets.
My side effects with Ribociclib are mostly fatigue especially in third week, lesser extent sore eyes, abdominal pain, peripheral oedema ( getting better), dry/ itchy skin, & some hair thinning.
If the SE are too much my Oncologist whom I saw on Friday will reduce dose. I get a CT scan in Feb and results in March to see how this treatment is with me.
Judith xx
Thank you so much fot your reply. Sounds like you have been through quite a lot! Will let you know how I get on expecting to hear this week and will start my tablets.
Sending you Best wishes
Mandy
xxx
I'm on cycle 5 and find it ok. I get a bit tired and feet/hands are starting to dry out but I also use the udderley cream which helps.
I take 5 tablets twice a day for 14 days then a week off, it's hard going as a lot of tablets but have got used to it. The thing I find hard is having to eat with them and keep them approx 12 hours apart.
I have had hormone treatment and 4 chemos that had no effect but I had scan results just before Xmas and for the first time since diagnosis I was told I was stable.
Good luck xx
Thank you for replying. What are your 5 tablets? I have had hormone treatment for 5yrs from 2013 then was told to come off within 3 months got cancer back. That was July 1918 been having treatment since chemo tabs didn't work radiotherapy then hormone injections worked till I got to 18 . Then just had 18 weekly chemo sessions half way scan showed Good results but last scan cancer has grown
starting tablets this week
Hi I did not have breast cancer but I did have stomach cancer and Flot Chemo which has a devastating effect on your skin, nails and hair.... after all my treatment finished and I no longer need treatment apart from a Vit 12 injection we went on holiday in France. In the Chemist I found some fantastic cream for your skin called MeMe Cream which is specially designed for ladies going through chemo... they do a body cream, a face cream, special treatment for your nails, it is quite expensive but believe me I have found it worth every penny... here is a link I hope this will be useful to a lot of women and men, they suffer too.. https://www.memecosmetics.fr/en/my-face/12-moisturiser.html I recommended to friends in the states but they cannot import it... if you cannot get it perhaps you can ask a friend who is going to France... it is brilliant imho... just thought I would pass this on...
Hi
I'm on capecitabine 5 tablets twice a day for 14 days then a week off. I was diagnosed as secondary from the beginning and have tried hormone, targeted treatment and 4 chemos before this one. I have everything crossed this one will work!!
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