Secondary breast cancer spread to the bone.

Hello Lollipops84

I’ve not posted on a forum before but I wanted to say hi. I’ve just (7th January) had the same diagnosis as you, and although I am older than you I too have a 14 year old (daughter). Most importantly though, I too am utterly terrified (petrified is a very good word, as for the few days after my diagnosis I felt as though my body was made of ice, and I could hardly move with fear). A month on, I am feeling a little better, and really trying to hold on to the idea that breast cancer with bone mets can be seen, and treated, as a long term chronic condition, and for an indefinite time. Have you been able to get some counselling? I have found that it does help a bit. Also, so does reading people’s posts on here, and crucially, knowing that you are not alone, although it can often feel as if you are. Do let me know how you are getting on. And of course, everyone please keep posting positive stories, as they are largely what is keeping me going!

Thank you for huge reply and I’m so sorry your going through this also. What meds are you on? I start mine next week. I’ve been in a daze since Tuesday and I’m not sure what I should be doing if that makes sense? I’m utterly terrified to. Can I add you as a friend on here to keep in touch? Xx

https://community.macmillan.org.uk/cancer_types/breast-secondary-cancer/f/breast-secondary-cancer-forum/186433/positive-secondary-breast-cancer-stories

Hi Lollipops84, if you have not already found it, please check out the positive stories thread (link is above). I too have spread to bones and have been told by my oncologist and breast surgeon that we can live for many many years with spread to bones. It can be controlled and treatments are improving all the time so please don't despair.

Good luck

Thank you I have joined the group last week. I am trying to be more positive but it’s really hard and I’m a naturally anxious person and a diagnoses like this has sent that into overdrive and all I keep thinking is how long have I got...I know I shouldn’t but it’s only been a week so I guess I’m still coming to terms with it. I have also been told there are lots of treatment options and I’m expected to do well so I’m holding onto that. Thank you for your positive post xx

Hi, I was diagnosed last year with secondaries in bone too. Out at the end and enjoying each day  You can pm if you wish.

Hey noswad1

I was diagnosed as well on 7th January and it’s hit me pretty hard. I’m finding this online community (and particularly the positive stories thread) really helpful. So thank you!

Hi LivingVic,

I’ve got a headache and my iPad’s battery is v low so apologies that this message is brief. I was browsing and saw you’ve put a post on the New to the Community. I am sorry you feel alone and I wanted to say ‘hi’. If you read my profile, we do have similarities in our experiences and also as I was diagnosed just under 3 months ago, I am a newbie but have gleaned so much knowledge from this site and another forum since my diagnosis. When I initially got a diagnosis, a well meaning haematologist thought I had stomach cancer or an adenocarcinoma with Primary unknown - it was all v vague anyway and I spent the weekend googling cancer types and convincing myself I didn’t have long to live. On the Monday, the oncologist told me I had Secondary Breast Cancer in the bones but I couldn’t understand why there was a breast care nurse in the room. I was telling him, I don’t have breast cancer but it soon became clear.

I would be happy to answer any questions you’ve got if you wanted to message me or just ask on here.  If I don’t know the answer, someone else will!

xxxxxx

Hi lollipops84                                                                                                                                                                                                                                                Like you i only joined this week, I am also trying to be positive and finding it almost impossible to do, too much crying going on in my case.I am waiting for a bone scan to see if i have secondary bone cancer, i had my breast cancer in 2004 so i have had 16 years of great health so came as a shock to say the least  I to think how long have i got.... and i know its not good but tell my head that its only been 3 day since the doctor said he was worried by my chest x ray so like you i am still trying to come to terms with it. best wishes Xx

Hi, I finished chemo 8 years ago, I had a mastectomy 1st, then herceptin, still taking tamoxifen, had a x ray on my pelvis due to achy hip, x ray has shown 2 dark suspicious lucency. Now waiting for urgent bone scan, I'm worried sick. Just wondered if anyone else had been in this situation? I hate this waiting xx

Hi 

Sorry to read you are having to go through the scanxiety of waiting results stage again - It's always a worry that you won't get the answers you hope for.

All lucency means is areas of different density, so ok this could be a sign of secondary bone cancer but is just as likely to be due to lack of oestrogen and natural aging causing some form of change in your bone density (osteopenic)

As there are two types of bone scan, do you know if this scan is a half hour DEXA bone density scan or the 3 hour Nuclear Bone Scan ?

Fingers crossed for good results, G n' J