Hope youre doing ok. I just wondered if anyone had been in the above treatment and how they found it. Im going on it in 5 weeks time but have heard its not very well tolerated but gives good results. Any advice would be welcome please x
Assuming this is sacituzumab govetican for secondary TNBC, I haven’t been on it but thought I would add that it’s brand name is Trodelvy, as I have seen others post about Trodelvy. It will be my next line of treatment if/when my current remaining remission fails to hold (I have metastatic TNBC). From what I have seen, people can get gastric issues, but that’s true of a lot of treatments. Hoping you get a good outcome from it.
Hello! Yes I’ve just started as well. I’m on my first round and feeling very tired, sore throat. There’s as lot of other bits to the initial infusion (4 hours). I didn’t realise that I also needed to self inject and take steroids for three days after infusions. Good luck.
i started this treatment the middle of December after three years on Capecitabine which stopped working. I don’t feel too bad after the first infusion, although the steroids do keep me awake, I am able to carry on as usual. It is the second infusion the following week and the injections which make me feel exhausted. I do get more indigestion now than I’m used to but when I think back I got a lot of indigestion when I started on the Capecitabine but that gradually went so am hoping it will be the same now. I have to say that in the three week cycle I have a lot more good days than bad which for me is important.
i do have a sore mouth so if anyone could recommend a gentle toothpaste I would be grateful.
Good luck with your treatment, I hope you get more good days than bad.
Hi Lolly, just checking how you’re getting on with your treatment. I just had my first infusion without the 3 injections afterwards. Feel terrible. Not sure if you’ve had the same.
So sorry to hear youre feeling awful. Could it be because its the first one and your body needs to get used to it? What are the 3 injections after and why didnt you have them?
I haven't started Sac yet as after a few discussions with my oncologist we decided to wait a little longer. I think ,next time though, she's going to say I need it.
