We've created a new thread for radiotherapy discussions.
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Hi
Listen to your body. I’ve never felt exhaustion like how I’ve felt post op. Add to the mind games that the C word triggers it becomes a perfect storm. My health is more important that having a perfect attendance record.
Thanks so much all, you've all been so reassuring and open in sharing your thoughts and experiences, this is such a comfort and an enormous help to me, and I hope your journeys are all going well. I totally understand how you're feeling and it seems this is a great place to be able to share what we're going through x
Morning Jurassicgirl
Just want to say I hope your appointment goes well today and leaves you feeling a little less emotional. I have mine on Thursday and like you I think 5 sessions is looking likely but apparently it's up for discussion as to 5 or 15, so I'll be very interested to know how you get on, if you're happy to share of course.
I took the step of emailing my surgery today to ask for time off during and after radiotherapy, and I hate that I'm feeling guilty about it! Let's see what they say.
Best wishes all x
Thank you for you kind thoughts and remembering my appointment is today. I am touched and it means a lot. I'm feeling anxious but keeping busy working from home so that takes my mind off it a little
Thanks again xx
Hi Lotaz
Just back from my oncology appointment and confirmed as 5 sessions so now waiting for the planning appointment to come through as they couldn't say when that would be which is a little frustrating as back to waiting again
That said I do have my end of treatment review appointment for 7th March so I am assuming it will happen before then !
Hi Jurassicgirl
Oh no, more waiting! Well at least you are another step closer to getting this all behind you, with what seems like an end date in sight! Hopefully you'll be feeling a little better. I'll post my update after my visit on Thursday
Morning all,
So I met the oncologist and had the planning session on Thursday and it was fine, 5 days starting on 17th, although I was basically given the choice between 5 or 15, I sense my oncologist is pretty on the fence with this. I briefly talked about my stress and time off work with him and also the radiology team who were all great and told me to listen to what my body was telling me and take the time I need. They told me to speak to my gp and I have a phone appt booked for weds. However I've since found out that you can take up to 28 days now without a sick note, I've never done it before but thought it was 7 days, so I may not have needed to speak to the gp but will keep the appointment anyway in case I find I need longer than 28 days. I think I'm hoping I can take about a month off from the date they start. I've since spoken to my manager and had a mini meltdown, and he has been awesome. He's strongly encouraging me to take time out for once. I found this chat very hard to do, like admitting defeat :-( but such a relief to get the support. I said I want to work next week to try and tie up some loose ends before I leave and he said ok but just dip in and out according to how you feel, but no obligation.
The CT scan itself was a bit intimidating but didn't take long and I found the team very reassuring. They said they'll give me cream on the first day and they even let me into the 'cockpit' to look at the scans!
Good luck and best wishes all x
Hi my planning appointment has come through for 17th Jan so fingers crossed my sessions will finish around beginning of Feb. Although I'm not looking forward to RT ( I feel it's quite "exposing" if you know what I mean and that makes me feel vulnerable) I just want it over with !
On a positive note scars continue to heal really well and I noticed yesterday that my blue splodge is definitely starting to fade !!!
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