Following a great suggestion from Cocopops1 we're going to trial a radiotherapy club, similar to the chemo club, where people undergoing, or about to undergo, radiotherapy treatment can share their experiences.
To get it going, we thought it would be a good idea to collect your top tips to pass on to those coming after you.
So if you have any tips for dealing with radiotherapy treatment, please post them here.
Macmillan Radiotherapy for Breast Cancer Information page link.
Most Radiotherapy Units have Free or greatly reduced Parking Fees for Rads Patients - Check with your hospital about this at your pre-rads assessment appointment :)
Post breast/lymph node surgery exercises are important regarding radiotherapy to try and get as much shoulder /arm mobility as possible to minimise pain and discomfort (especially after a lymphnode clearance) during your radiotherapy sessions. BCC Post Surgery Exercise Booklet link.
G n' J
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It really helps us all when replying :)
Great idea.i am finished but
Get air to your boob
Don't wear a bra
Lose fitting tops
I used r1 and r2 cream which were fantastic,
I put r1 on straight after rt
Then r2 4 times a day
If it felt hot I used 99% aloe Vera gel from holland and Barrett
I had slightly pink skin but that's all and a brown nipple.
Hope that helps....good luck
one day at a time xxxx
I used R1 &R2 creams and gels with great success.
Other thing which helped me was the hospital transport to and from the radiotherapy center, in my health authority the service was run by volunteer drivers (they got their petrol and expenses and a little more to make it worthwhile ). Basically they were fab, picked you up each day and brought you home really friendly and cheery. Many of them were men who had retired early.
They were lovely, bought me sweets mildly flirted with me and saved me all the effort and hassle of driving and parking. But mostly they were kind strangers who cheered me up.
Great idea.....everything everyone has already said....I'd like to add the following
At planning appointment if you don't want the tattoos there are alternatives...
R1 and R2. Fab
Request your appointments at the same time each day to give 24 hours rest for your skin
I worked so had rt at 3pm and long waits so if you can have them as early in the morning as you can no queue!!!!
Remember loads of fluid
I'm a week and a day post rt and skin has settled down...just a problem with my nipple weeping but doable
Take antihistamine each day get on prescription for higher dosage....I had no itchiness at all ( 180mg fexofenadine hydrochloride by Telfast)
As I worked and had to wear a bra so if you are in the same position ask for mepilex pads straight away they are softly adhesive and great for protecting underwire against skin especially for those of us with bigger boobs
Ask for the wipes to take off the felt tip marks I hated them but that's personal but their wipes are great
Air the area as much as you can
Deffo get bionsin roll on its actually very good and I'm still going to use it whilst still healing
Book onto the move more programme its very good and you meet others...no doom and gloom just good exercise and lots of laughs
Hope this helps
Hugs and rainbows
Rainbows make me smile inside and out...think what makes you smile? Hold onto it xxxx
Hi I know I didn't have chemo but to be honest I just don't know why people make so much of having rads, I found it so easy I wore a bra, used deodorant, I could hardly notice any reaction on my skin, and im fair skinned, I used aloe vera gel organic, the treatments hardly seemed to take any time at all, the staff were all lovely and helpful, sometimes friends took me in evening but during day I caught the bus there and back, ok I do live in a city on a good bus route direct to hospital, and continued sitting my friends dog. I was so relieved I didn't have to have chemo,which Im sure might make it harder, and that my other removed nodes were clear rads was so easy and hardly affected me at all. Possibly I was lucky but im no spring chicken was 67 at time, and I cant honestly say my cataract operation was worse than rads, June
Then I would say just how lucky you were.....I had 19 treatments have had problems with some burning but most of all a weeping nipple which is slowly getting better...I worked throughout and would rush to get to my appointment ....twice on time the rest at least 40 minutes late....some of the staff not helpful or nice....I think you need to be aware that we all have our own journey and some are far longer than others..and more stressed both emotionally and physically
I'm pleased things went well for you but we aren't all as lucky and any constructive advice to help others is good....the little things become sooo important
Rainbow Debs xxxx
Great idea! So here we go.
I am 8 days post radiotherapy. I tried to get R1 and R2 but not available from my CCG! I used pure Aloe Vera (have to keep in the fridge) which was lovely and cooling. Skin is "sunburnt" but not uncomfortable, except for just under my breast, where my bra strap goes. Here it has gone a dark brown colour and is quite sore, this is just a bit away from my scar so think I will get it checked out.
Although I had a few sharp pains in my breast at the beginning of rt, I now have pains on and off all day and night which I am struggling with. I was told rt carries on working for a couple of weeks after the last treatment but does anyone know if these pains go away after that? I am also quite swollen on that side, around and under my arm. Not in the armpit. I had a seroma and cording after my op in December 2016 but thought that had got better.
To the lady who sailed through rt. I am pleased it did not have any adverse effects on you, but we all experience things differently and although the radiotherapy staff, receptionists etc could not have been kinder to me, I found the 45-50 minute trip there, plus the waiting time, broken machines on a couple of occasions, then the 45-50 minutes home again tiring. I didn't think it would affect me much as I was very positive about it all and grateful I didn't need chemo, but I found by the last few sessions and even now, I a quite emotional about it.
Thanks for this post Rainbow Debs. Just excellent. Xxx
No problems at all. Used pure aloe Vera gel. My unit hadn't heard of r1 and 2 but didn't really tell me to use anything. They didn't expect me to have any problems and I didn't. Just went very slightly pink. Worst thing was the waiting half hour to 40 minutes late on a few occasions. Free parking and lovely staff. Used E 45 at night just for a bit of extra moisturising.
Positive mental attitude keeping me sane amongst all this madness xx
Hi I am due to start radiotherapy next week and appreciate all the helpful advice but I dont know what R1 R2 is. Can you tell me please ?
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