Hello
I've just been diagnosed with invasive ductal cancer grade 3 triple negative I'm so scared is anyone going through the same?
It’s so hard not to worry . I think we worry when we are asked to go for a CT scan and we worry when we don’t have one . Have you had surgery first ? When do you start chemo ? Xxx
Yes, lumpectomy and sentinel lymph node removal. All clear. Chemo starts Tuesday 15th March. FECT. Then RT plus Herceptin and Anastrazole later on - long term.
Good you have a plan . I initially had FECT without the F !!! Now waiting for 12 weeks of PC . No long term drugs as none really effective for TNBC . Drink loads before during and after chemo , take all anti sickness even if not feeling sick as hard to get on top of it if you don’t. Avoid your favourite foods as it can put you off eating them when chemo finishes it ruined a few for me xxx
Hey Claud . Just in case you are reading any of this just wanted to let you know I am still thinking of you xxx
No not for ages , I’m worried about her and none of us have any contact details for her . We have all shared Clauds journey as she has ours I just hope she is ok xxx
Thanks Harley!
Well in the end I went to my appt as it was for the ultrasound and to talk to the surgeon prior to my op so it felt too important to reschedule and I slept quite well last night so I felt a bit better this morning.
The ultrasound shows that my tumour has shrunk as a result of the chemo so that´s positve news and the surgeon is hoping to do the least invasive surgery/lumpectomy possible but obviously what happens on the day might be another story...
Inbetween the ultrasound and appt with the surgeon, we had a few hours to spare so my hb said I should get my cold checked out in case it had gone to my chest (I was coughing a lot this morning). So we went up to the chemo ward where they see you for any irregularities. I felt really daft as I was convinced it was just a cold but my hb was determined.
So I had blood tests (2 horrible needle extractions as the 1st one didn´t work well due to exhausted veins after all the chemo ) and the dr examined my chest etc.
Whilst I was waiting for the blood tests to come back, I asked the nurse who´d taken my blood what they might suggest to help and I understood "we´ll give you more chemo" and I started to go into mini meltdown mode because wtf right?!
But after a confused conversation it turns out she´d said, "we won´t be able to give you more chemo." Bearing in mind I was tired and feeling poorly so not firing on all cylinders. Plus I´m in Spain so all of this is in Spanish which is not usually a problem but at times chemo brain doesn´t help! Anyway I pointed out that I´d finished all my sessions so that wasn´t an issue anyway so she said she´d go tell the dr. But I had already told him so all of that was very confusing and stressful tbh and I did feel like a wally for misunderstanding
But bloods and chest exam came back all clear thankfully and I could go on to my appt with the surgeon. What a day though!
When we came home, I was so tired, I collapsed on the sofa and slept for 2 hours!
Sounds like quite a day . Great news that the tumour has shrunk and you may get away with a lumpectomy .
I’m not surprised you were tired after all that , great that your husband was looking out for you and it’s never daft to get things checked out . Do you have any idea when your operation might be ? Xx
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