It's good to know they safeguard you in such a way so that you know you can just pick up the phone and someone will be there for your concerns if any.
Sounds like you're doing OK post op...even though antibiotics prescribed. Make sure u finish entire course of meds.
Are you coming to terms with post op self? This would take time as you have more surgery with Diep. For me I think it's getting better for sure. Wound so itchy I try not to scratch lol but it's a good sign hopefully.
Your so cute V hahaha...at times you just lose the will to feel shame anymore. I had that when all the students were looking at the business end when my baby was about to pop out!!
Like you I have also got back to back scans for mri/ct. Totally exhausted after and my knees went and had to sit down ...6hours of no food. I quickly asked for biscuit and tea and that picked me right up!
In mri yes very uncomfy but I just pretended to be superman! I think more padding required as bone in plastic doesn't quite cut it!
Harley...you have done it once and you know what to expect. Perhaps just concentrate on the music in your ears. I wish they let you choose Ed sheeran or something more popular to make us relax better...the trick is to transport yourself to a different world. Hard coz of all the noise I know. But at least not bad as ct which makes u feel like peeing on yourself lol I only bought one wig, in case I can't get along as u said. Again these things do make u itch big time too.
Mel, I was too surprised when she says it. I suppose if any lump found then you quick go back for more proper scans. They won't put you in these machines unnecessarily as they cost a fortune to run...and as with any machines they got a lifespan in usage. I will be interested to know what aftercare as I think it's all very different from hospital to hospital.
Key best of luck with results day. Fingers and toes crossed for positive news!
Any of you having hormone suppressants? Just thinking how I am going to cope being thrown into early menopause. How I can comfort myself with the effects of it? Just so many things to consider...sigh!!
I guess most of you are still doing chemo or recovering fr op just like me. Sending you all much love and loveliness
Hi, I will be having hormones. I have been told by oncologist because pre menopause will be Tamoxifen but can be changed later on if needed. The side effects don't sound the best but the benefits clearly outweigh the risks and Ii will just have to deal with them as I go along x
Thank you. Sounds like excellent care. I too will have to travel 2 hrs away to another hospital. I know this may sound a stupid question, but wil they mammogram/ultrasound a diep breast for follow up? I am just wondering how the would check for recurrence? Probably just getting ahead of myself and a queation really for the consultant to answer x
Hi Claud I had two tumors stage 2 and 1 so I had both breasts removed had 1 lymph node with microscope metastases . oncotype score high also needed 4 sessions of chemotherapy EC , which I think is standard treatment for lymph node involved estrogen positive and her 2 negative early breast cancer. Got a 1 in 10 chance after chemotherapy that it will come back, which will be the same as having a low oncotype score. I'm having Bone strengthing infusions every 6 months for 3 years and 10 years of estrogen blocker. That's the plan if I get 10 years I will be 74 so not too bad at all really. Hopefully the treatment won't kill me before that !but they are taking good care of me .
Hi. It’s definitely not a daft question. As it’s no longer breast tissue they don’t need to check for recurrence. You don’t even get it checked on routine follow up. You no longer have milk ducts or lobes and as this is where it usually starts it’s all gone. I think they still do mammogram on other side as normal but more frequently. So some good news after it all xx
Hi Rinnie 53 and Everyone ,yes this is what my surgeon said to me after bilateral mastectomy but it can come back elsewhere in the body and if so it presents as breast cancer . So I feel that those who have no breast tissue should have scans every year as they would in other countries just as a precaution. When I enquired about this with Spire hospitals was quoted 1000 pounds if , and this is the problem not just the money if your Surgeons or GP allows it ! So still not enough done from those of us with no breast tissue and can not have other tests
Mel...we could exchange notes then when time comes as I am not sure what is given to me just yet. My first thought is that we will have some menopausal symptoms I guess.
Is that for CT or MRI? Because I’ve heard that in terms of picking up tumours, CT is best. MRI can pick up so much noise that it’s virtually useless unless you know what you’re looking for. As private clinics will do whatever you pay them might be worth checking with the NHS about what scans they’d do if money were no object. And what happens if a private clinic picks up something of concern. Are they then going to charge you for biopsies? My dad who has lymphoma has annual CR scans under the NHS to check for tumours
How do you work out risk factors of reoccurrence? Is this something I ask the onco...am such a rookie I am unprepared for my call next week! So afraid of bad news these days! I am also concerned about my bone density...so will ask. I don't take supplements for bones and wonder if I should. The pharmacist consultation was rubbish as she asked what supplements I took...I told her and that was that, even though I asked if I ought to stop during chemo or continue. Nothing heard!
