just diagnosed and so scared

FormerMember
FormerMember
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Hello

I've just been diagnosed with invasive ductal cancer grade 3 triple negative I'm so scared is anyone going through the same? 

  • Yes that's what I was told Mel, hand feel for mastectomy side as u would normally breast check, then if feels lumpy then quickly go back to them.

    As for remaining boob, annual mamo...maybe ask your team? As long as we keep on top of things, it will be OK Mel ...follow as how you checked yourself before diagnosis...big hugs x

    C x

  • I do agree they ought to provide these checks across the board but with NHS, its always the issue with costs isn't it!! Sadly!

    C x

  • Sadly we all have to seem to bow to the altar of how marvellous the NHS is, because it is free, but sometimes more money is spent in the long run rectifying mistakes. I had to have two operations - haematoma not spotted despite all the BCNs saying all healing beautifully. Surgeon saw same thing and looked aghast. Also, how come Sir Tom died of Covid - must have caught it while he was in hospital.He did not have Covid when he was admitted.

  • FormerMember
    FormerMember in reply to -Ana-

    Hi Ana it's CT price full body 

  • FormerMember
    FormerMember in reply to Claud272

    Yes ask the onco it's £ 3000 pounds and your tissue goes to California it's must be early Breast cancer and 1-3 nodes only effected her 2 neg and estrogen positive hope this helps NHS pays 

  • FormerMember
    FormerMember in reply to Claud272

    Ask for an Oncotype test 

  • Hi Harleybear

    I’m glad to hear that you enjoyed your few days away. And that you almost forgot about the cancer. Sorry to hear that your CT results are not back yet, hopefully you will have them soon.

    Best of luck with your last EC next week.

    Best wishes

    Daisy xxx

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  • So funny ! You pretended to be superman !!!! That's such a good idea and has me laughing. In my MRI they were mri ing pelvis as well (I didn't bother asking why, but should have done I suppose) and felt a bit sick.It was very vibratory on tummy. I'm on Letrozole, which gives hot flushes during the night and does make joints ache sometimes but not all the time. 

  • FormerMember
    FormerMember in reply to Claud272

    Yes but remember cancer is a protected area so Boris and Drakeford can't do much about that ! 

  • To be honest V NHS isn't free as we pay NI!! God knows how much I have paid I the past and never really used it! I find it frustrating not being able to get in with GPs. Sorry about your not so nice experience witn the NHS. I never feel secure going esp when you hear ppl go in and the catch MRSA etc! 

    I tend to be a bit childish..at times laughter IS the best medicine! Love the word MRI-ing ..that needs to go into Thesaurus lol

    I was just thinking whether working will help me be less focused on SEs....but then worry about committing due to fatigue.

    C x