L-Glutamine for Neuropathy

FormerMember over 4 years ago

5 replies
275 subscribers
736 views

Hi ladies,

I hope you are all well + coping with this very cold weather!

I wonder if you can help me? I have read that L-Glutamine is really effective in preventing neuropathy when on Paclitaxel/Carboplatin for TNBC. I start this combo on the 3rd March + want to give it a go. My oncologist has given the go-ahead + said that even the pharmacist at the hospital has stated that it is very effective but because the oncologist doesn't usually use it, he can't advise on dose or when to start taking it! All very frustrating + not very helpful if you ask me

Have any of you taken it for TNBC + my combo of chemo that can offer advice on dosage + when to start taking it? And, shed some light on whether it has been effective for you?

Thanks so much!

Pip x

Londonmumof2 over 4 years ago

Hi Pip,

https://clinicaltrials.gov/ct2/show/NCT02215083

Is details of the regime used in trials. It states 10g 2x daily. As with any B vitamin is a good idea to take a supplement containing them all at least sometimes to prevent a build up of one.

“Remember to look up at the stars and not down at your feet. Stephen Hawking,

FormerMember over 4 years ago in reply to Londonmumof2

Thanks so much Londonmumof2

Have you used it? When you say take a supplement containing them all. do you mean all the B vitamins or vitamins in general? Will have a good read later x

Bramble22 over 4 years ago

I have neuropathy in my toes and, don’t laugh, I’m trying Vicks Vapour rub on them...will report back on whether it works or not. I’m guesssing not but you have to try don’t you!

FormerMember over 4 years ago in reply to Bramble22

You absolutely have to try Bramble22 How's the vicks working out?

Bramble22 over 4 years ago in reply to FormerMember

So far as predicted no change! Will keep doing it for another couple of weeks. I’m wondering if it’s the massaging that helps rather than what you use?

More from this forum

L-Glutamine for Neuropathy