Possible delay to surgery due to Covid

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Hi to everyone.

I was diagnosed with invasive lobular cancer on 16th November 2020 and my mastectomy is due on 20th January 2021.   I am beginning to wonder whether it will go ahead with the Covid situation (I live in South East London - just on the borders with Kent).  The news is all about the extreme pressure the NHS is under and I haven't heard anything about a pre op assessment - speaking with my BCN hopefully today.

My question is - even if my operation is going ahead should I have it?!?!    I'm a bit worried about going into a hospital when there is so much covid infection around.   I'm on Letrozole and apparently this is the best treatment for me.   I am wondering whether to delay the op until this wave of covid calms down.  I may of course not have the choice if it is cancelled anyway.

My other concern is that although I know I do not want any reconstruction, I am really worried about how I will feel waking up minus a boob.   Anyone else been where I am at the moment?

Thanks for listening.    Sue

  • FormerMember
    FormerMember

    Hi Sue,If I was you I would have the Op if it is able to go ahead. We do not know if things will change and there could be delays further into the year and then a back log. All cancer surgery staff are fully tested, all patients. All theaters are fully steralised  inbetween patients. My hospital have reduced each theatre to four ops a day to do this. I obviously do not know your diagnosis or treatment plan but I would have the op. I had my MX in Nov and being minus a boob is feeling fine (just glad the C has gone) . Maybe have a look at joining Flat friends on facebook. Wishing all the best. Anna x

  • Hi Sue

    I was also diagnosed with lobular cancer in both breasts on 23rd November. Long story short due to being small, having two little buggers as I call them in one if my breasts coupled with not very clear scans due to dense breast tissue , I'm also having mastectomy for both. This is scheduled for this Friday so I'm now on the countdown. The whole Covid situation has also stressed me out thinking my operation would be cancelled so I think I'm the opposite to you, as I'd rather the op go ahead. I know operations were cancelled last week at my local hospital but they said were going on a week by week basis. I've been for my covid test today so hoping the op still goes ahead. I decided on reconstruction so can't comment on how you might feel but I'm sure others on here may put your mind at ease. Fingers crossed on whatever you decide.

    Much love Claire x

  • Hi Anna,

    Thanks so much for your reply (think you may have answered me once before when I first joined).    You have really helped me.  I hadn't thought about a possible long backlog and all the info about how the hospitals are being so careful gives peace of mind.   Also your experience of your MX and how you feel has made me feel I can do this. 

    I was hoping to speak to my BCN today but found out she is on leave and was feeling very alone with all this but you have really cheered me up and I think I will sleep better tonight.    Thankyou and lots of hugs (but not too tight of course!).  Sue

  • Hi Claire,

    Thanks for getting in touch.   I really hope your op goes ahead on Friday - sending you much love and hugs.   I get so annoyed when I hear of people not sticking to the lockdown rules.  We were doing all the right things long before I knew my diagnosis.  Don't they realise how this impacts on people like us?  

    Stay in touch and lets all hope for a much better 2021.  

    Love sue

  • Hi Sue

    You're right it is so annoying but unfortunately unless people are affected directly they cannot see the repercussions. I really hope your operation goes ahead and we'll all get through this with a smile on our faces

    Xxx

  • Hi All,

    An update - I've just heard my op is going ahead and 1 day earlier than planned.  Now due next Tuesday afternoon,19th January.   I actually feel ok about it all and I'm glad that it will at last be done.

    My BCN phoned late this afternoon and I feel so much better now knowing what to plan for.  Still apprehensive but much more positive than I was a few days ago.

    Thanks to everyone who responded to my initial post.   You have all helped so much and it is just amazing how much support we can all get from this online community.  So glad I found you all.

    I'll be back in touch as soon as I feel up to it after the op.   

    Love Sue x

  • Hi Sue

    I'm glad you're feeling a little bit more positive and that your operation is going ahead. I'm feeling a little nervous but that's understandable for us all. This group is fantastic, I don't necessarily post very often but do read and take on board all if the advice from the lovely ladies on here.

    Good luck for next week xx

  • Hi Claire,

    Good luck for Friday.  Will be thinking of you and sending much love.  Sue xx

  • FormerMember
    FormerMember in reply to SueHMac

    Good Luck Sue, will be thinking of you. Let us know how when you are home. Big hugs. x

  • Hi Anna,

    Well it's done!   A week ago last Tuesday (19th).   I was anxious but needn't have been.  Everything went really well and I am so grateful that the lymph nodes were clear.   I feel extremely lucky and know that that's not the case for everyone.   

    I wasn't in any pain to speak off but now I have quite a lot of pain/stinging under my arm - not where the scar is surprisingly.   I suppose this must be where the nodes where taken and I'm doing my exercises like a 'good girl'.

    Just been discharged from the early release nurses but they said they are there if I need them.  Have my follow up phone call appointment on 3rd Feb so will find out more then about any other treatment - radiotherapy I expect at least, which is fine.

    Being without my boob has actually been ok.   I'm quite surprised at how ok I am about it.   Have put the 'bra' on with my pretend boob a couple of times and my husband didn't even notice!  

    If I didn't have the pain under my arm I would be back to normal already.  Quite amazing.  

    Hope you are doing ok and thanks again for all your support and advice.   

    Love Sue x