New to the group

Hi and a very warm welcome to this weird but wonderful online club. We would none of us have chosen to join but lots of support and shared experiences here. My cancer was slightly different to yours but there are lots of HER2+ folk here, they’ve got through the treatment and are doing well. I’m sure ’s wife was HER2+ so I’m tagging him as he’s always got helpful advice and information. 

Definitely resist Dr Google, so much out there is out of date or sometimes simply wrong. I try to stick to Macmillan and breastcancernow. 

Waiting for treatment to start is the pits, I think we’ve all felt relieved when things start happening. Keep posting, ask lots of questions or just rant and rave if you feel the need!

Gentle hugs, HFxx

Hi , welcome to the gang.

Staying positive is so hard as you don’t feel in control but we can all get through this together. Lots of great guys on here with advice and pick you ups.

I wasn’t HER2 so cannot advise specifically on this but I had mastectomy in October and radiotherapy in December and it’s a rollercoaster only we can understand.

We are all with you keep in touch and huge hugs xx

Hi

Welcome to the club no one wants to join. It's a rollercoaster experience with lots of ups and downs along the way. I'm not HER2+ but I have read plenty of other peoples experiences on this forum and they've all given me hope and the determination of getting through this horrific disease. There is plenty of stories of people who are coping with her2+ , I'm sure they will be along soon to offer you guidance and reassurance. 

We all have times of struggling with our emotions , it's a long road ahead. You've come to the right place because alot of people on here have raised my spirits no end. Im sure they'll  do the same for you. Your not alone , remember that

Read a few members profiles they are truly inspirational and give lots of hope and dampen the fears your feeling. 

Take care 

J x

I cannot believe the braveness of everyone on here! I’ve only done one chemo session and an ready to give up! It’s sad that it’s the treatment that makes us sick and not the cancer itself! Please tell me it will be alright in the end and that I can do it.. I’m fed up of crying  

, you got this!!!!!!! 
The treatment is pants and life after takes a lot of getting used to but together we can support us all through it.

crying is part and parcel, I do it more now even though I finished treatment at Christmas, I didn’t have chemo just surgery and radio, and blame it on my hormones, meds and the realisation of what has happened, you get caught up in the mayhem for a while and don’t realise what your going through.

So a good cry never hurt anyone, just remember we have all been where you are or at same stage and will lift you up whenever you need it x

Huge hugs to you, each day is a new day, keep in touch xx

hi 

I've not started chemo yet so dont know how it will affect me , however theres a thread called the febuary chemo club I'm sure they'll be some great advice on there for you. I've read that from day 4 you feel ill till about day 10 and then start to pick up.  I'm hoping this is the case. Hope each cycle gets easier for you. 

Take care 

Jx

Thanks J,

I’ll read up on it! I’m just so fed up of feeling sick! I thought I’d go back to work after the first chemo but just couldn’t move... 

I’m in day 6 so I’m hoping it doesn’t get any worse.. it’s the sickness that is pretty bad. I hope your first one goes ok  

I'm no expert but I have read lots of peoples stories , most say to contact your chemo team if you have any bad side effects. Have you got any anti sickness tablets ? From the information I've gathered alot of people have said not to suffer in silence. Dont wait for your next round speak with your team. 

I'm hoping mine goes ok , have to have ct scan and bone scan first. I'm scared but eager to get this show on the road so I can get back to work. Doubt I'll be going back till after chemo as finished as I'm public facing so risk of Infection. Great stuff ! Bored stupid sat at home. 

Theres not much action on the feb chemo thread but the january one is still available to view , not sure you can comment on that one though as I believe they shut it off as a new one starts. 

You can do this , 1 down 5 to go !! 

J x

Hi

My story is on my profile just click my name for it to come up .If you get the chance fill in your profile it makes it easier when people chat to you.

I am HER2 positive Had my MX in July finished chemo in Dec and now on preventative treatment .

Im sure will be along shortly to reassure you . 

Being HER2 pos is no longer as scary as it used to be ...yes it is a recurring cancer but there is now treatment to prevent that happening ! 

Your treatment plan is based on you ..your age ,health etc and type of cancer . I am post menopause 

so having had MX prior to HER2 diagnosis I then had on three weekly cycles EC x6 now having Herceptin injections until Jan 2021 . 

Also an infusion every six months of  a Bisphosphonate for three year all as a preventative this has all served to make me feel positive .

We're all different so your treatment plan will most probably differ but as I said it will be tailored to you .

Everyone feels scared when told Got cancer regardless of type so take a breath and try not to worry about things too far ahead ..just deal with each day at a time. Once you start your treatment plan it does become easier ..honest ! 

Margaret x

Hi

My story on profile if you want to read just click on my name . 

I had EC chemo x6 on three weekly cycle it is doable not pleasant but if you are suffering the SEs then that means chemo is doing its job and kicking cancers arse !!

If you go to Feb chemo thread there is a link on first page with hints on how to cope with some of the SEs 

Take you anti sickness meds even if you don't feel sick .

If you are actually vomiting tell your team they can change your meds .

Your team are there to help you get thru chemo so talk to them about how you are feeling .

One thing I found really helpful was keeping a chemo diary  . Day 1 is day of chemo . You will find that there is usually a pattern to Side Effects . 

Good days when you feel almost normal tends to be around day 12/15 so plan some treats for then .

We are all different so keeping a diary shows you your pattern but you will get thru it cos you are stronger than you think we all are !

keep posting 

Margaret