Hello everyone. I’ve never done this before so feeling a bit anxious. I was diagnosed with Invasive Ductal Carcinoma on Dec 5th and had my first Chemo on 8th of Jan. I’m coping not too badly with regards to side effects. I managed the cool cap so up to now my hair is still there but I’m not pinning my hopes on it staying. I feel very daunted at the really long road ahead and how bad the side effects may become. I’m trying to stay positive as have three children under 10 and want their lives to remain as normal as possible but my head is full of all sorts of thoughts. Hoping writing it here will help
Hi Joanne2683 welcome to the forum and sorry that you have had to find us but glad that you have as we can hopefully alleviate some of that anxiety for you.
I wondered if you knew that there is a chemo discussion on the breast cancer forum and maybe worth you posting in there as someone who is or has been through chemo could maybe help.
Im not surprised that you feel daunted but the secret is to take a small bit of the road at a time and dont look too far ahead as you will get overwhelmed by it all. That was a tip someone gave me when I started treatment to take on bit at a time and believe me when I say that it does work.
What is normal in this situation? Normal is whatever you want it to be because someone has just put a stick of dynamite under your world and completely rocked all the stable foundations that you know so its ok to not be ok and hope that makes sense?
The other thing that you could do is to pick up the phone and have a chat with someone at Macmillan on 08088080000 as they are great listeners and also very supportive and knowledgeable as well..
Meantime I'm sending some huge big hugs your way for now.xxxx
Hi , sorry you have found yourself here but it has been a great source of support to me.
I started ec chemo on 7th December so at a very similar stage to you I think? I haven't had surgery yet, then radiotherapy to follow. I'm trying to take it one stage at a time, and doing my best to stay positive, but it's a rollercoaster and some days you just have to have a good cry!
One thing I'd definitely advise is to let school know what's happening, my daughters headmistress and form teacher have been brilliant, she has a password if she feels upset but doesn't want to say why in class, a book to write her worries in. They have also been very understanding if we are late or want to take her out of school during term time.(daughter is 8).
I've not figured out how to copy links yet but at top of page is a January chemo thread, and there are a few threads such as awake ,thought for the day, that people generally chat on. A few pages back there one called chemo and hair loss if the cold cap doesn't work.
Hope this helps a little bit, more support will be along shortly I'm sure xxxx
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