Beginning a journey

FormerMember
FormerMember
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Today I was diagnosed with lobular grade 2 breast cancer. Awaiting further tests..mri and ct scan as its in the lymph...any of you lovely people got any advice...am in complete shock and devastated

  • Hi ,

    so sorry to hear your news but welcome to the group and there will be lots of support for you on here, as there has been for me. Lots of people say, and I found to he true, that the waiting for scans and results is the worst time and when you know what you are dealing with and have a treatment plan it feels like you are doing something to kick cancers arse and that helps. You can always talk to the Macmillan phone lines and hopefully you have access to a breast cancer nurse for support. Try and take one step at a time, try not to Google because lots of info is 5 years old (I didn't take my own advice on this one) . Sending you hugs and do keep posting as I've found this site invaluable for support xxxx

  • Hi ,

    so sorry to hear your news but welcome to the group and there will be lots of support for you on here, as there has been for me. Lots of people say, and I found to he true, that the waiting for scans and results is the worst time and when you know what you are dealing with and have a treatment plan it feels like you are doing something to kick cancers arse and that helps. You can always talk to the Macmillan phone lines and hopefully you have access to a breast cancer nurse for support. Try and take one step at a time, try not to Google because lots of info is 5 years old (I didn't take my own advice on this one) . Sending you hugs and do keep posting as I've found this site invaluable for support xxxx

  • FormerMember
    FormerMember in reply to Cheeboe

    Hi Cheeboe

    Thats reassuring as my thoughts are.all over the place at the moment...I am feeling overwhelmed and scared, which is natural I suppose. Its so unfair and such a complete shock, but knowing I am not alone is less isolating.

    Where are you on your journey?

    Xx

  • FormerMember
    FormerMember in reply to FormerMember

    Hello red6721

    i am a relative newbie too. I was diagnosed on 26th Nov and, like you, it was a complete bolt from the blue. I haven’t got any good advice except stick around here because everybody is so supportive and friendly. I have calmed down a bit in the past four weeks but I still have the odd moment of sheer panic. I’m not going to say anything about being positive because there is absolutely nothing positive about this but I’ve sort of got through it by deciding that although I may have very little control about what happens, I can, at least control how I react. I’m so sorry that you are going through this. Keep in touch x x 

  • Hi

    My story is on my profile just click on my name if you want to read it how far on the journey I am 

    Ok take a breath ......  I know you don't want to be here but it is one of the best places to be for you to get support and advice .  We know how you are feeling we've all been there 

    As someone already said this is the worst time ..the waiting ..the roller coaster you seem to have landed on that won't stop so you can think .

    The best advice for you at the moment is don't google mostly out of date . Ask here someone will come along to answer or just chat . 

    Mainly you need to try to distract yourself ..it is possible  honest . Don't try to think too far forward just one step ,one day at a time . My way of coping was making sure everyone knew so I nominated people to spread the word not to ignore my situation but to treat me as normal .

    The  house got a spring clean .

    Have a browse around the threads there are some interesting stories ,this is the place to shout ,rant ,moan or even have a laugh with people who understand .

    keep posting 

    margaret x

    One step at a time and ...Breathe !
    xoxox
    Margaret
  • , if you click on peoples names you can see there story on the profile. I'm due my 2nd chemotherapy on 27th and so far it hasn't been as bad as I was expecting (touch wood!) I have 8 in total and will start hormone treatment and herceptin,  then surgery and radiotherapy so a long journey for me but the doctors have said (with luck and no guarantees) that I am considered curable even though in lymph nodes so there is hope. Your right it is unfair and totally crap but you aren't alone. I've had so much support on here. I'm trying to stay positive,  live in the moment but obviously a good cry now and then is necessary.  I never thought I'd be able to cope with anything like this but I am more or less. Take it one step at a time and keep posting.  Hugs!!! 

  • FormerMember
    FormerMember in reply to FormerMember

    Am still in sheer shock...didnt sleep last night imagining all scenarios...but really nice to know I am not on my own.

    have you started treatment?

    xx

  • FormerMember
    FormerMember in reply to Northerner

    Yes the waiting is the worst. Thats a really good idea, nominating people. I run my own business so am now looking at planning for 2020 and 2021...

    can't believe how everyone has been...you have all been so welcoming, thank you. It means a lot

    Red xx

  • FormerMember
    FormerMember in reply to Cheeboe

    Thanks Cheeboe

    pleased to hear your chemo is off to a good start, staying positive I think is a key factor. and thanks for the tips on navigation...I won't feel such a wally

    I think you are right too...one day at a time makes it manageable

    sending positive vibes xx

  • FormerMember
    FormerMember in reply to FormerMember

    How you doing today Red6721? X x