Lobular beast - is it back??

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Hiya all,

I had bc three years ago, in fact my op was three years ago tomorrow. This week, for the first time in 3 years,I have felt changes in my breasts, even in my implant one which is a bit weird. My breasts feel heavier and uncomfortable. It is the same kind of feeling that I felt years ago.

I am taking letrozole and I have had my ovaries removed which means that I should not have any oestrogen in my system.(my bc was oestogen positive 8/8) I checked with the biology teachers today (I am a chemistry teacher) and I think that I should not have any hormones in my system that would cause changes in my breasts. So this is making me wonder what is it????

I also have back ache, which I don't know if it is due to the letrozole, ( I have osteopenia in my spine) or post chemo and radio treatment, or just because I am getting older - I am 46.

I have a 6 month wait to check the level of osteophenia in my spine. But currently I am feeling really tired and exhausted.

I have tried to ring the bc nurses today, several times - so I will try next week.

I realise that most people on the forum are going through their first active treatment of the b**tard disease and can't comment. Are there any lurkers around who have had bc in the past that might comment??

Cwtches,

Gay xxx

Lacomtekp over 5 years ago

Hello,

On Dec 2nd I have my four year mammogram. My lumpectomy was Nov 24th 2015. It happens every time before my mammogram or my oncology appointment which is always in June/ July that I get pains in my breast. It feels hard and heavy. Each time I am told it's internal healing....calcification etc. I can't understand how it happens every time but when I am told all is still well....the pain seems to disappear again. I hope this is your problem too....do you have a mammogram soon? I imagine you should if it's three years since your op. But I can understand why you are worried. The closer I get to the five years.....the more sure I am it may be back.

But apart from these pains and the hardness in places.....I have no real reason to think it has. It is not long now for me until I know for this year and I won't have to wait for results as where I live, I'll take them home.

I'm sure you'll be ok too Wombat.......but I also hope someone medical puts your mind at rest soon too.

Love Karen

FormerMember over 5 years ago in reply to Lacomtekp

Wombat , so sorry you have this worry , I remember you from when I was first on this site and met you in Birmingham........

i think we always have secondaries on our radar , the only thing you can do is get reassurance from the team , and if it does turn out to be something awful , there are basses of us living with secondaries , even though that is a scary thought , honestly , I am able to do just as much as I did pre cancer , I am tired , but I am old !!

Teaching is a stressful job , I hope you find there is nothing sinister going on , please keep posting , there are lots on here who remember you and will send positive good luck vibes your way ,,,,,,,,best of luck

Optimistic over 5 years ago

Hi wombat.23 sending love. I'm sorry you have this worry. I've had on going rib pain from wearing bra mainly but recently had it checked by Spec Ct scan thankfully all clear so I do understand the constant worry. Will it be your mammogram soon ? mine is early December. Definitely get it checked and hopefully get reassured sorry I can't offer more but wishing you well x

seaspirit44 over 5 years ago in reply to Optimistic

Sorry to hear this wombat.23. I met you in Brum in 2018.

If you cannot get through to your BCN suggest you get s GP appt asap and get referred.

I am a 10 year neddy, and have had 2 major scares along the way, and have been OK.

Big hugs, and hope it is all well xx

Onwards and flatwards (don't do hills) and keep walking if you can!

Snowys Mum over 5 years ago in reply to seaspirit44

Hi wombat.23 hopefully you will get seen next week and this could be anything....a horrible virus making everything ache including bust and back.

Sending hugs to you xxx

Helen

wombat.23 over 5 years ago in reply to Snowys Mum

Thank you for my replies.

Lovely to here from you all. I think I am just feeling rundown. I guess it could all be in my head as it is around the time of year that I had my dx. But my back ache is getting on my nerves now - trying every painkiller going,

I usually have to chase up mammogram appointments.

My GP surgery is closing down on 31st Dec. The main GPs are retiring, so have to find a new surgery.When I went to ask to be referred for the dexa bone scan which I need every two years she told me to wait until I had a new GP in January, make an appointment and ask for a referral then!!! I politely said you are having a laugh, what do you think this appointment (that I had to wait two weeks for) is for? So I don't have sympathetic GPs.

Probably will ring bcn this week - if I can get through...

Cwtches,

Gay xxx

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Lobular beast - is it back??