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Hi , my name Lorraine. I’m 47 , mum of 2 , nanny of 3 ! 2020 was diagnosed with stage 3a lung cancer. 2022 was diagnosed with secondary brain cancer. Am currently waiting for radiotherapy to start . Had life saving brain surgery beginning of January this...
My 33 year old son was diagnosed with a PPTID in his 3rd ventricle in 2012. He had gamma knife radiation for it and it shrunk the tumour and stopped it growing. He has had 6 monthly MRI to check it and every time it has stayed the same. I think this lulled...
I have a grade 3 astrocytic tumour, it was diagnosed recently after having an operation in which they took a slice of my brain to test for cancer. It all started when I had an eye exam in boots and they realised something wasn't right. They referred me...
Hey folks, My names Vaughan. My sister has a Glioma that was discovered in 2018. It is stage 1 and we have been told it is in-operable. She is 40, lives with her partner of 10 years and has 2 children - 19 and 12. We found out about the tumour because...
I recently completed the first 9 months of treatment and was waiting to hear the results from my last scan when on the day of my appointment I was rung at home by my consultant. Due to pressure of work he wanted to know if I could proceed on a telephone...
Hello, Has anyone on this forum with a brain tumour had a so called “liquid biopsy” (eg a provider in the U.K. is guardant offering their 360 test using blood samples). Has anyone got any experience of this and If so was relevant dna found and was their...
Hi all, Well, today I finally go into Birmingham’s Queen Elizabeth Hospital for surgery to remove my newly diagnosed (though was misdiagnosed as a GBM back in 2012) Anaplastic Oligodendroglioma which has had a recent recurrence. Although I know it...
My husband has had his tumour removed and will be starting 6 weeks of radiotherapy in the next few weeks then TMZ chemo for 1 year. They didn’t go in to the chemo side too much at our visit on Thursday as it was mainly about the radiotherapy. He was...
MIL was diagnosed with terminal brain cancer in October, her decline has been rapid - she sleeps most of the day and seems to be up all night. She is confused 95% of the time and the deterioration seems quite rapid. I spoke to macmillan support tonight...
Hi I have recently been diagnosed with stage 4 Glioblastoma aged 51. I had bowel cancer aged 37, I was tested for Lynch Syndrome which makes me at high risk of colon cancers and other cancers. I carry the mismatch gene MSH2, my daughter carries the gene...
