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This has taken over my life in the past few weeks/couple of months and it’s all I ever seem to think or talk about. I everyone tells me I am so brave and strong and I don’t feel it. I feel heartbroken, numb and everything else in between. My dad has...
Having struggled to sign up here because my brain isn't functioning as it used to, and my vision is blurred and I've lost my sense of taste and it may be all down to the steroids or not. I am feeling really annoyed with myself. I had several, what were...
My Dad had a stroke 3 weeks ago. They discovered a brain tumour and that is what caused the stroke. He lost mobility in his left hand side. He was quite physically fit for his age (72) and used to be able to go on long walks of between 3 and 5, and...
Hello everyone I’m new here! Sorry if I ramble on! My mum was diagnosed with 5 small tumours on her right frontal lobe in April. They initially thought she had a mild stroke but she deteriorated and was admitted to hospital and they confirmed she had...
I am so scared for my husband he’s 47 we have children aged 13 and 11. He is awaiting surgery to have it removed and to then see what the next steps are when they have found the grade and type. Has anyone please got any support as to surviving longer...
Hi everyone, My husband was diagnosed with Follicular Lymphoma in Jan 2021 and Glioblastoma in March 2022. Is there anyone else in this group who has both? I'm beyond despair at the unfairness of it all that a perfectly healthy man who has never led...
2nd awake craniotomy done, but very hard so be prepared, recovery is longer as well
Hi everyone My wife has been invited for spring booster jab for Covid-19. This will be her 5th booster. We sent a message to Oncology team and CNS has replied that my wife can have it if she is happy to have. We are a bit confused re is it better...
Hi, My dad got diagnosed with stage 4 brain cancer over Christmas and we have been told he only has 12-14 months left of his life. I am 19 and about to move to uni but I just feel so lost and sad. I’ve never had to deal with anything like this in my...
So I’ve recently been diagnosed with a grade 2 glioma. Neurosurgeon is talking about doing an awake craniotomy. I understand the procedure, but I’m curious if anyone else has gone through it and what it actually felt like. Only thing I can guess it’s...
