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hi, im new to this. I’ve had secondary metastasis from thyroid cancer removed from skull and brain. Is anyone here living with large craniectomy? I am living with a hole the size of my hand in my skull and what they call a “parenchyma hernia”. I...
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My memory has been wiped for about the last 15 years. My children tell me that it started about five years ago kept coming home work feeling and being sick. Diagnosed with a rare form of brain cancer sorry but cannot remember full name. Was explain to...
Hi, my husband has fairly recently been diagnosed with grade 4 glioblastoma. He’s had surgery which went well. Today we saw oncologist to discuss radiotherapy and chemo which is due to start in a couple of weeks. I’m so scared. He wants to know as little...
Hi all I was diagnosed as having a primary brain tumour back in November and after my biopsy, it was confirmed my tumour was a grade 2 Astro diffused glioma. Therefore it could not be removed. I have had 40 sessions of proton beam radiotherapy at...
Hi I am Naj my son been diagnosed with brain tumour which is cancerous stage 3, I just want to know from anyone who have been experiencing same condition and gone through treatment just explain more about their experiences with me
Hi everyone, I hope I find you all relatively well and cheerful. I was diagnosed with Glioblastoma a couple of months back, if it had not been for the initial talk with the neurosurgeon I doubt I would know yet what was going on. He told me in no uncertain...
Hi, I am new to the forum but in need of positive support. My 30 year old very fit sports mad,newly married son has been diagnosed with Glio stage 2-3 Brain Tumour completely out of the blue, having had a seizure. Successful surgery has removed all of...
I was recently diagnosed with stage 3 glioma, I had an operation on tge 14th of February, and now waiting to start my treatment soon which is 6 weeks of radiotherapy 5 days a week followed by chemotherapy up to 12 months, I'm feeling scared of loosing...
Hi! I’ve been having a lot of neurological symptoms since beginning of March. Numbness and tingling in limbs, head, face, weakness of my right side, almost daily headaches, a lot of dizziness/vertigo, confusion & forgetfulness. Hand seizures and that...
