Glioblastoma stage 4

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He is so moody but then he follows me everywhere. He really misses having a licence after surrendering it, but he thinks because he's not had any seizures since the op he takes the car out. I darent report him. I love him but he's so so childish but I'll. I feel so awful 

  • Not being able to drive is very frustrating, its the one thing I struggle with. I have been told its  two years seizure free after treatment and the consultant has to verify this! Maybe worth mentioning his insurance is invalid ? 
    take care. X

  • HI Nanny2B

    Oh I hear you - especially about the car. G loved his cars and losing his licence was one of the bitterest pills to swallow. As Tashie has pointed out his insurance is invalid. To also point out the obvious, if stopped he has no licence either. And Heaven forbid, what if he had an accident?....I'll leave that thought there.

    The DVLA is quite clear on the position too with regards to ever reapplying for his licence. Here's the link Neurological disorders: assessing fitness to drive - GOV.UK

    It is beyond challenging supporting someone through this journey but you have to show some tough love sometimes for their own good (just like you would a child -although I stopped just shy of "because I said so!" with G)  The moodiness could be the medication or the tumour itself but its worth mentioning to the medical team.

    Please remember that we're here for you. This is a safe and supportive space so please reach out here anytime. There's always someone about to listen who gets it, someone to gold your hand and to offer a virtual hug when its needed.. You're not alone.

    It’s always good to talk so please remember that you can also call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, benefit and financial guidance or just a listening ear.

    sending you a huge virtual hug and love and endless patience

    love n hugs

    Wee Me xx

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • My husband has never had a seizure but like everyone with this disease surrended his licence.In theory he is allowed to reply in September -I'll keep you all informed how long that process takes and insurance costs.

  • Hiya Blush Thank you for the advice Pray I'm trying to drive him where he needs to go, but he's taken the car out already once this week without my knowledge Cry. Hubby's latest mri came back as no new growth. He was diagnosed in April 2023 tumour removed very quickly.  Even though no further seizures have occurred and he still takes anti epileptic tablets, he will have be 2 years clear next month.  I am so annoyed with his consultant at addenbrooks for putting on paper ( his last mri results/consultation) that he has already exceeded his expectated limit.!!! Now he worries constantly and breaks down often and annoys me by trying to drive.  

    Today has been hard. 2 years since I lost my mum to cancer and it's mothers day. Thankyou for the advice again x

  • I must be really thick. Getting logged in takes me an hour to log in. Sorry Disappointed