Tiredness/exhaustion after treatment.

Should probably add for anyone that hasn't read my previous. GBM grade 4, inoperable. 

I’m in a similar situation - GBM grade 4, inoperable. I had my biopsy Jan 6th, finished radiotherapy and TMZ, had circa 4 weeks off and now on Lomustine for 1 day and TMZ for 5 days then 6 weeks off before repeating cycle (on cycle 2). Fatigue hit me at the end of radiotherapy and TMZ and during my 4 week break. Exercise helps me but I do have to be careful not to overdo it! Also taking a couple of days off and in bed and max sleep help (albeit frustrating stuck not doing anything), Fatigue on the new chemo regime(lomustine & TMZ)  seems to be worse but hospital saying no concerns except to take it easy and not over do things.

I’m learning in cycle when fatigue is bad and when it’s OK. Not found any silver bullet apart from accepting its part of the ‘process’ and treatment.

Stick with it and best of luck.

Thank you. It's really good to get the experience of someone who's been there. 

Appreciate the reply. 

Be interesting to find out what cycle 2 comprises of. Good to see you are a couple of months ahead of me on my journey. 

It's not been an easy ride and that's good advice from you. I think I definitely need to learn to rest more. 

HI Living Life

Panicking is understandable so please don't be too hard on yourself here.

Fatigue was the main side effect that my late husband suffered during the 6 week oral chemo/radiotherapy regime and the fatigue lasted for about a month after the treatment finished. Everyone is different though so there are no hard and fast timelines here. He was very physically fit (he was a marathon runner) and did gradually build it back up quite quickly once the fatigue stage passed.

I can't comment on the impact/side effects of the chemo only follow up treatment as he opted to decline all other offers of treatment at those initial six weeks.

I'd encourage you to mention how you're feeling to your medical team. If you feel that you can't wait the two weeks til your next appointment, then give them a call.

sending love and and light and hugs and energy to you

Wee Me xx

Thank you. I'm so glad I reached out. I'm realising it's okay (human almost ;-) ) to admit how fearful it can be at times. 

I've noticed you say that your husband was around 4 weeks of fatigue after the 6 week treatment. I need to accept everyone is different and stop trying to stick exactly to time frames mentioned to me.

I think the exhaustion starts to impact you mentally and that can have a real shift.

I'll rest more over next week or 2 and manage what I can and hopefully be in a better place physically and mentally soon.