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I find it sad that so many join the site but vanish like ships passing in the night. It’s a shame just see a comment on a page and then they’re gone. I know it’s difficult for all of us with this Big C, please add me if you like but please share your...
Hi new here, my mum diagnosed jan 2024 with grade four glioblastoma, had it de bulked had radio and chemo until august 24 had to stop due to toxicity. Tumour is shrinking still and it is now 2ml. although it’s shrinking, she can now barely walk is breathless...
I'm hoping someone knowledgeable can take a look at my pill popping regime and advise whether I've covered all bases other than CBD oil which I need to grill my oncologist about. I figured that if I try as much as possible, I won't have any regrets...
Hi all, My son was (25y) at the time of diagnosis with non germinoma germ cell tumours to the pineal and pituitary glands plus LMD. Has anyone else had similar diagnosis? I understand it to be a rare type of cancer so not met anyone who has been able...
Hello Everyone, I am sorry I did not intorduce myself. I joined the forum to find people going through the same situation as myself. As I previously said, my Husband of 53 years was diagnosed in May with this horrible tumour and yesterday was taken in...
My Husband was diagnosed with this type of brain caner in May this year with a very short prognoses.I am in need of help to know to know what to look out for in the coming weeks as this disease progesses.
Hi there This has all happened a bit suddenly, it feels like - I had an MRI on Friday, and I knew there was something up - they kept me in for ages, did a contrast scan which I wasn't expecting and asked me about my consultant. He rang on the weekend...
Hi Everyone, my Husband Paul was diagnosed wit’s Glioblastoma on 23/04/25 - we were advised that he has a ‘few months’ and that ‘there is no gking back from this’ we were told MDT would meet and we would receive a follow up appointment. After waiting...
Hi all. New here and just wondering how people are navigating anxiety around seizures. My partner has just been diagnosed with neck cancer which has spread to the brain and lungs. He had 2 significant seizures yesterday, one at home and the second in...
My wife had been deteriorating ladt few weeks froma palce where she was doing so well. Originally they said it was due to the high dose of chemo and the build up of toxicity in her body and her body had just rejected it. 2 weeks down the line really poorly...
