Hi all My husband started having pins and needles in his face and one side of his arm about 12 months ago. He visited the DRs and was told it was migrains. He eventually went back to the DRs and got sent for a MRI scan. While we were awaiting results...
Hi all I have only joined the community today! Last week I was rushed into hospital and had a crainiotonoy if right frontal lobe. I was told this week that the tumour was grade 3 and I will need chemotherapy, radiotherapy or both also to make sure there...
It's been awhile since I posted. I wanted to post the outcome of my husband's last scan results and have often thought of the other forum members who post here. There have been so many changes this year - many of which have been unwanted changes. I guess...
Hi all, just a greeting and to see if there are any diagnosis similar to myself. I have a grade 3 astrocytoma cdkn2a/2b. I discovered or should I say symptoms began last year during covid.jan 2022. I woke up ( having only a mild covid sniffles) in the...
I have been told I cannot drive for 12 months after my final treatment but have seen several things on line that suggest it doesn’t have to be this long. Does anyone know what the rules are? I’m finding it very isolating as I live in a village with a...
I had a craniotomy in August and a lot of my head was numb after. The numbness is slowly going but I’m now getting these little shooting pains at the surgery site & the area is feeling quite tender. is this normal? I’m struggling to get hold of my oncologist...
I’ve tried to search but can’t seem to find any information. Does anyone know How long I have to wait before I can dye my hair after radiation to my brain? I’ve not had chemo and my operation was nearly 2 months ago. thanks in advance!
Hey everyone and hope all is good as it can be my stage three ( see my scribbles ) has grown a bit and they’re changing my chemo to CCNU 1 tablet every 6 weeks. dies anyone have any experience or knowledge of it Thank you WJ
Hello. it’s my first time in this group. My husband, 52 years old had a seizure in Apr 22 while walking along canal side and was rushed to hospital in ambulance. He underwent various tests and was diagnosed with brain tumour. Jun22 he had his surgery...
I’m finding everything really hard atm and I don’t know what to do anymore. I’m sick of chasing pain and illness while achieving very little. Waiting room after waiting room, Dr after Dr, referral after referal. What am I even trying to achieve anymore...
