Hi folks. Not been here awhile,but right now I am looking for a bit of help and advice. I have grade 4 Glioblastoma. Terminal. My treatment,as you all know is just to try and keep the tumour at bay. My original radio/ chemo treatment hasn’t worked. Therefore I am now on PCV chemotherapy. When taking the Procarbazine there is certain food I cannot eat. There is no real information as to whether or not I can eat the improper food AFTER my treatment has ended!
my question is; My PCV is now finished . Does anyone know if I can eat the listed food ,or have a glass of wine when I am inbetween my PCV treatment? I don’t want to eat excessively,but it would be nice to eat Stilton cheese or ripe tomatoes from my greenhouse!
I cannot get information from anyone in the health care system by the way. Thanks in advance.
HI Mumf
sorry to hear you're struggling to get the info you need. I have found some info in the main body of the website that might help
PCV | Macmillan Cancer Support
I found some info sheets linked to NHS
Dietary-advice-whilst-receiving-PCV-chemotherapy.pdf (bsuh.nhs.uk)
There's also some info on he Cancer Research plge
Procarbazine, lomustine and vincristine (PCV) | Cancer Information | Cancer Research UK
I hope some of that is of use.
Please remember you can also access the MacMillan helpdesk (number is below) or reach out via the Ask An Expert section of the online community.
For now though I'm sending you a huge virtual hug and lots of positive energy. Stay strong,
love n hugs
Wee Me xx
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
So many thanks! I will look at the links you have provided then take it from there. Our local pharmacy is actually looking into what is rather vague information. He will tell me today. I will come back with that.
A six week treatment with effectively a month of no drug taking would be nice if I could eat a few things I like. I am not asking for much. Hopefully I will come up with a plan!
thanks again.
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