First scan results left us a bit in limbo with a residual area of original tumour in temporal lobe possibly showing slight regrowth or could be results of radiotherapy treatment that often makes scan unclear. But inflammation all gone , brain pressure is normal, which is brilliant. Got to wait 2 months till next scan. That’s quite hard being left not knowing. Has anyone experienced anything similar? We were so stressed going in and just not sure what to think.
Hi Strawberry Blonde
We experienced the same at G's first scans after his op and after his 6 weeks of oral chemo/radiotherapy. It takes time for things to settle down. Hard as it is please try to be patient. Draw comfort from the fact that the team are happy to wait 2 months between scans. You need to try to trust their judgement. Again easier said then done sometimes.
We got into a rhythm of maintenance scans every 3 months. Scan days were always stressful and waiting for the results doesn't get any easier but its routine you slip into.
Stay strong. Sending love and light and hugs
Wee Me xx
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Thankyou so much , they did say the first scan was possibly going to be like this , guess was hoping for some sort of positive news , been a long 5 months for him
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