Astrocytoma Grade three

Hello W J  A warm welcome to the MacMillan Community. I have just read through you personal journey and you have been through the mill with the cancer. You have also gone through Radiotherapy and Chemo - and reading your story you appear on the face of it to be doing well and the treatments are working.

I am so sorry your post has gone unanswered - I can't reply as I have a different cancer - however by me replying it will "bump" your post back up to the top of the forum and it will be seen by other Community members with a similar diagnosis.

If I can do anything for you please don't hesitate to contact me - I wish you well on your latest treatment.

Best wishes - Brian.

It’s ok  WeeMe greeted me nicely. My post was only removed as I had put pictures up. So I reposted for others to read. 
Hope you’re well and thanks again

Aw that's greatW J - She's fantastic - yes pictures aren't the best on here sometimes.

I am fine thanks - 22 months into a Prostate Cancer journey but all is good.

Best wishes - Brian.

Hi W J,

I was diagnosed with a grade 2 astrocytoma but unfortunately mine is inoperable so I’m currently on the what I like to call the wait and see line it’s every 3 months surveillance via a contrast mri to see how quickly it’s growing. I have seizures daily anything from focal to tonic clonic for the last 2.5 years this has been happening. I hope they get to remove the rest or it at least the chemo tablets help. I’m a little lost as to who to get some support from because nobody I know has a clue what it feels like to be trapped like this. I’ve just turned 43 myself. It seems like the doctors are to scared to put me into chemo but I have no clue what I’m supposed to do wait for it to change? Sorry I’m rambling but you’re the first person I’ve heard of having the same type of tumour. I’m Claire btw. How are you coping after the surgery? 

Hi W J I have the exact same diagnosis. Surgery was 4 weeks ago and we were pleased thinking it was a G2 until the CDKN2a/2b result came back borderline, so they have bumped it up to a G3. Doctors are now treating it much more aggresively - higher radiation and chemo - and I feel really worried.

I was diagnosed as I was having a LOT of right side seizures (left side tumour), but all partial and GP didn't recognise. How have you found radio and chemo? I'm about to start. Did you do craniotomy awake?

Hello Claire11 and Joolaboola I hope you don't mind me jumping into your conversation. Claire said

Claire11 said:

I’m a little lost as to who to get some support from

Have you tried our telephone support line on 0808 808 00 00 (8am to 8pm 7 days a week). It's a free call and I am sure the great folk on the end of the line can find some additional support for you.

I hope this helps a little and I wish you both well.

Best wishes - Brian.

Sorry I wasn’t here to see your replies, as I’ve had a bad cold so needed that sorting before I get my next chemo ( almost over it with anti Bs. As the kind millibob said

MacMillan Cancer Support  0808 808 00 00. (8am - 8pm 7 days a week).

• they’re there to help you in any way they can through your troubled times. 
  Claire11- you ramble as much as you want, that’s the point I think here, to help share and relieve your self of doubt. Sharing is caring and a problem shared is a problem halved. Read my profile, I’m using it as a little diary x stay strong. 
  Joolaboola- hey there. My chemo went ok as can be. I’ll be honest I was a bit apprehensive on the first one after my surgery as I had a seizure during my pre op MRI (2 hour MRI to see what brain parts with and without stimulus, I lasted 15 minutes lol. But was fine after). The radio therapy post op was ok. I had a mask fitting in the table, A little warm but ok for me, stretched over your face to stop any movement during your treatment. Was done in a couple of minutes. But that was the same for the treatment. Only took a couple of minutes. Very nice staff. Although I couldn’t remember their names. But don’t worry in that at all. I did lose hair on the bit they focused on but all of it has grown back (if a lil fluffy). The chemo depends on what you’ll be recommended. I was on temozolomide a week on and three off. I was ok with mine to be fair. No real sickness ( they give you anti S) just tiredness. That was for six or seven weeks. And then the chemo. Now I’m a different chemo as mine wasn’t enough. I’ll update my profile as it goes on. Stay strong friend