brain tumour in young age

Hi and welcome to the online community although I'm sorry you've had to come and find us.

I'm sorry to hear that you have been told that you have a growth in your front lobe and I can understand why you're scared to go for further tests.

I don't have any experience with brain tumours but I've found this information for you that Macmillan have produced on young people and brain tumours. You could also give the Macmillan Support Line a call on 0808 808 0000 and chat to one of their specialist nurses. It's free to call and available every day from 8am to 8pm.

x

Hi Rose, 

im so sorry that you’ve had such a frightening experience but firstly you don’t even know what type of tumour you have? If you have a grade 1or 2 (low grade) these are Not cancer! It’s only grade 3 & 4 that are. I think there are over a 103 different types of tumour so you do need to find out, using with an MRI with contrast and even then the consultant won’t know for sure! 

my son was 27 when he was diagnosed with a low grade 2 Glioma. It was in his left temporal lobe. He had been having absent seizures for over a year and then had a grand mal seizure. He was put on anti epilepsy medication but the absence seizures continued. 

as soon as they found the tumour August 2017 they sent him to see a neurologist and gave him the option of surgery, which he took. He has done very well since and remains well xx

Rose,

I was 27 when i had my first seizure it was then it was discovered that had a glioblastoma multiforme for short. It’s a pretty broad term but my actual diagnoses was a grade 4 anaplastic astrocytoma giant cell. From the moment I found out I had a such a serious condition and the tumour was not benign i began a extremely strict ketogenic diet which in 2016 I had never heard but after a lot of research i decided if I was going to live to see my children grow old I needed to make some drastic changes. When initially diagnosed I was 185lbs 6’ tall after being placed on cortisol for a 4 months I was 244lbs. By the end of my treatments I was back to my normal weight thanks to the diet my MRI scans just days after my final radiotherapy sessions were completed my MRI was clear again because of anti inflammatory effects of the diet and there was no inflammation what’s so ever. It’s been a long hard journey with multiple surgeries, multiple seizures, right side of my body was completely paralyzed but none of that matters now. Throughout all the treatments I never stopped being active, haven’t waivered from the ketogenic diet constantly being aware of what I’m putting in my body. I’ve read some articles that really contradict the “golden standard of care” and the whole idea keeping a balanced diet of all food groups which was my idea of a healthy lifestyle had all been for waste. This has led me to today GBM free for near 4 years in February my GP and oncologists are both astonished at how well I am doing and both hardly acknowledge that I keep to a strict diet, they think it’s a miracle but if you look at facts I’d say otherwise. I should add my surgery was a full resection and the tumour was in my pre motor cortex which caused the paralysis. From everything I’ve read on average between the ages of 26-34 is when this particular tumour occurs and it’s almost always in young adults. Along with the diet I also take CBD oil and will most likely be on anti seizure meds for a long time to come but hopefully one day I will be off of them, I will always continue taking CBD oil made naturally without solvents or alcohol from a local organic hemp producer. Here is a very informative article that I’ve recently read. Good luck with everything and no matter the outcome keep your spirits up and don’t let a brain tumour control or define your life. Best of luck!
https://www.eurekalert.org/pub_releases/2019-05/bc-cct053019.php

PS

I do not take the antibiotics stated in the article but rather the CBD tincture that I believe is breaking through that blood brain barrier and helping with the cause. This is the first time I’ve posted any sort of personal experience figured after four years it was time to tell a small portion of what I’ve been through and where I am today. Hope this helps.