Folfirinox

Hi Hayleyc89, 

My husband is stage 4 colon cancer. He is currently on folfoxiri,he's had 3 cycles with Avastin being added next time. So far he hasn't lost his hair, although it has thinned quite a bit, I think I read it's after about 4 or 5 cycles hair loss is greater but not for all people, same as the side effects, seems to be different for each person too. Again whether it works or not seems down to the individual, some people have great response, others not so.

Here's hoping for great shrinkage. 

Frances xxx 

Thank you for your reply my husband is on he's 2nd cycle and so far apart from the feeling nauseaus and tired he hasn't really suffered like we thought he might from what we have heard so hopefully he will continue this way. Hope everything goes well for your husband xx

Yes, it's all so individual, everytime my husband has chemo, we wait with bated breath for any side effects but so far he's been lucky, always so pleased once the pump is off, then we resume normal life until the next cycle. 

Frances xx

My husband just had he's pump off today he always feels better once it's off as he feels restricted when he's pumps on. We also resume normal life but the 2 weeks seem to fly by xx

Ah, we're just one day ahead, pump off yesterday, nurse has just popped in to give the injection, then we're free. 

Frances xxx

We start injections tomorrow. Xx

Does he have more than one injection, Dave has just the one. 

How are you doing, it's a lot to take in isn't it?

Frances xx

Stuart just has 1 a day for a week and he has steroid tablets for the 1st 3 days after chemo. 

I'm doing ok I guess, we have 5 children so they keep me busy it's hard because me and my husband are both off work and the kids are off school again now so I'm finding it difficult keeping the kids entertained so Stuart can get plenty of rest. 

It's such a big change isn't it life just feels like it's been turned upside down but we will get there. 

I hope you're doing ok xxx

Gosh, 5 children, covid restrictions and now home schooling, what a trooper you are. We have 2 to homeschool and I'm not looking forward to it. It certainly does turn your world upside down, I struggle with not daring to plan anything too far ahead, just incase. Sort of puts everything into perspective too. I dread the wait on chemo days, whether his bloods will be good enough for chemo, then I do the what ifs even though it hasn't happened, always been an overthinker. 

This forum has been a godsend, finding people in the same situation. 

Take good care, good luck with the homeschooling too. 

Frances xxx

It's definitely a challenge!

I'm an overthinker too I can't relax on chemo days until stuart sends me a message to say he's on the drips I was looking at he's blood results the other day but I don't really know what is good and what isn't yet it's still all new and I'm not allowed to the appointments with him now and he doesn't like to ask questions he just goes with the flow. I have also found this site a god send it really does help to speak with people that are going through the same. 

Xx