Hi everyone,
I’m new here, Paul aged 42.
I had a weird job interview situation, I won’t bore anyone with it but I worked myself up about it I found myself with frequent diarrhoea enough to see the doc.
By the time the test showed up I’d bounced back, got the job and thought no more of it. Then last week came the call of a high FIT test 180.
I just got a telephone appointment presumably with a consultant after being put on the 2 week referral. Is this normal I was hoping for the colonoscopy ASAP.
I’m a lecturer at a college so up on show in front plenty teenagers daily and while at first I was actually alright. Especially after getting some bloods and all being within normal ranges, I’m shocked and disappointed in myself at how much I’m mentally spiralling, especially tonight. I see all of you guys on here be so strong and calm, but I can’t get it out my head. I always expect the worst as a defensive mechanism but in this case I think I’m my own worst enemy.
Anyway didn’t know where to voice anything, so sorry get it off my chest here. Better than unloading on my partner, who just left her nursing job in palliative care at St Oswolds today.
By far the unknown is the worst bit, where you're waiting and inevitably think about the worst possible outcome.
There are many examples of a high FIT test and it not being cancerous. I think I've seen quoted on here it's 1 in 10 colonoscopies that result in a cancer diagnosis.
Try to be kind to yourself and don't beat yourself up about worrying - it's very natural to. But remember through this forum you're going to see a lot more examples of the more unlucky colonoscopies.
Fingers crossed it all goes okay!
Thanks so much. I didn’t even expect a reply. But immediately felt better after posting in here. Can’t explain why.
Every day seems to take so long and I’ve another week to go to just get a phone call.
Still a bit stunned. But I’ve a cheek considering how tough some people on here have it. I may end up there but it’s rattled my head way more than so thought.
Hi PaulT42 and a warm welcome to the board - we’re here for everyone at every stage so please don’t feel bad about posting.
I was diagnosed back in 2016 and my first appointment was with a consultant who did a flexi sigmoidoscopy which checks the lower part of the bowel. He seemed to say that was clear but referred me for a colonoscopy where the tumour was found!
It’s natural to be worried but, as Keenrunner says, only 1 in 10 colonoscopies results in a bowel cancer diagnosis. There are several conditions that can cause blood in the stool such as polyps, ibs, colitis, diverticulitis etc. but the main thing is to get checked out.
If, and it is very much an if at this point, it does turn out to be bowel cancer then there is a lot of treatment available and I’ve been cancer free since 2016.
Please give the support desk a ring if you want to chat? They’re not just for people who’ve been diagnosed and sometimes it helps to just talk to someone?
Take care and please let us know how you get on?
Karen x
Hi, thanks so much for the reply.
i’m so surprised how nervous I am. Maybe it’s since I’ve only recently had my first child since then I could crew at a John Lewis advert.
But the wait to be seen; is it normal to have a phone call appointment before I get the actual colonoscopy. I kind of just want an answer and that’ll be 2 weeks since the doctors reached out and all I’ll have had is a telephone call.
Hi PaulT42
I think the gold standard treatment is to have a colonoscopy within 2 weeks of your doctors referral? Maybe give it another couple of days then chase your GP as they should know how long people are generally having to wait in your area
Hi I called the consultants office and was told sometimes they decide you don’t need the colonoscopy. Which at first frustrated me, but then gave me false hope that with relatively normal
looking bloods I might be able to get out of this scary chapter. However during the night I noticed a bit blood, looked like bloody snot clots. Not loads but enough to know the referral was valid. Anyway I photographed it and now more than ever I don’t want to be ‘fobbed’ off.
But yeah 2 weeks from the scary initial call I’ll get a consultant call and then see from there. Just wish I could control the negative thoughts
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