Op date changed

Hello Jaime, so sorry to hear this. I had a resection 6 years ago and then a stoma for three months until it all settled down. Had the stoma removed and had a special diet to help with through put. It’s not an easy process but you just have to do as your surgeon says. I preferred the erratic toilet habits to the stoma. Eventually I was offered a sacral nerve implant which, alongside the type of food input helps control the output (or poo). Some have it easier and some harder but the main thing is to work with the doctors and nurses and get the best out of the situation. After all my treatment I am still here having good times and memories. It is so hard to accept you have a problem and then have a delay in treatment, but you are nearly there. Wishing you all the very best for your recovery. 

Hi Jaimee1,

I'm sorry to hear this and  i'm sure the changes to your op date make your situation even worse, i have been in the same position myself and had the op in september, which was a high sigmoid colon resection, thankfully i didn't need a stoma which i think is everyones greatest fear.

I should try and look at it this way, you need the op and therefore  there's nothing you can do but to accept what will happen, i'm sure you will be okay but realise its easy for me to say, i had all the comments like you, stay strong, be positive and i also thought how ? but i think i just realised it was going to happen and there was nothing i could do anyway but to accept it.

All the best

TG

Thanks everyone x

Yes you will want to cry & you will also feel as though you are in a dream world....All these feelings you have right now are perfectly normal & natural. But once you have had the Op. you will start feeling very different. That will also take time, but it will be with much more of a sense of reality. One week of delay is actuality, a very short time....It will pass very quickly! For this extra time, why not think about treats for when you return home.....Books, favourite foods, music etc....

I was terrified about the Op. but it was far easier than I imagined...as for a Stoma, they have to mention it to everyone.

Wishing you all the best.

Marianne

so sorry you are having to wait. You have geared yourself up and then it doesn’t happen. 
That happened to me. I was in Hosp, did the bowel prep  fir my anterior resection, was waiting to go to theatre, and they came and told me there were no beds in HDU and sent me home! I W as of course very upset. I had to wait three weeks for my op, and even then they could not guarantee it would not happen again. It was an awful 3 weeks, but we got through it and the delayed op was a success. I recovered very quickly. I looked at the whole thing as if I had ‘dodged a bullet’ the first time, something would have gone wrong and fate intervened. That helped. Good luck 

Hi Jaimee I totally understand how you feel. I was told initially my op would be in Nov 19, it was then changed to Jan 20. I hated the thought of that because my treatment had finished in Jun 19 and I just thought that all the good that the chemo and radiotherapy had done would be wasted and the tumour would grow again. They then changed the date again to Dec 19 and I phoned the hospital to confirm I could do that date only to be told it had changed again back to Jan 20. Like you I found it hard to stay positive having geared myself up for the op 4 times.

I had an LAR with temporary stoma (which I still have,thanks to Covid) on 2nd Jan this year and have had my follow up scans which show no evidence of disease or spread.

The gearing up for the op and being told it's been delayed was the worst bit but now I'm through it I'm really grateful that it wasn't delayed further and I'm cancer free and just waiting for my reversal.

I wish you well for your op and recovery.

Thanks very much everyone reetpetite I’m so glad you came through it x good luck for the future too