from Sept 2018 - Todays update.

FormerMember
FormerMember
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hi to all you guys, Sept 2018, diagnosed stage two low down rectal cancer, told from the outset that permanent stoma would be most likely outcome, five weeks chemo/radio to shrink tumour down for surgery,got through treatment relatively unscathed,(12 trips to toilet a day& blowtorch bum for three weeks or so),then the dreaded ten week wait for results, I had a complete response & went on watch and wait,i would say to anyone, you have to be mentally strong to be on watch and wait, anyway had a wonderful nine months,and best of all got married to my good lady(albeit after 23 years of living together), then the devastation of being told they had seen something on last MRI scan, biopsies confirmed the bas--rd was back,so APR surgery on 16 October,started out keyhole, then because of radio scarring, surgeon had to do a c-section and then close the back door up, so to speak, eight days in hospital, so glad to get home, felt like I had been mugged by a herd of angry rhino's,glad I kept a daily diary,because you don't see the small day to day improvement's, week by week slowly getting stronger and fitter,first week home I could only walk 100 metre's a day,ten weeks on I am walking four miles now,as I am a keen cyclist my biggest fear was how my newly constructed derriere would cope with being plonked on a saddle,well after a few short rides and a steady increase in mileage I managed ten miles this morning,so more than happy,I am managing the stoma better than I would have ever imagined, as I was dreading it,so I just thought I would post this to give anyone that may well be about to go through anything similar something positive to read,it has been far from easy and there have been dark days, but fingers crossed i will be going back to work in a month or so, and I feel 90% back to being my old self, cheers john.

  • Cheers John as I’ve said before great encouragement reading your updates I had my scans after 6 six had very good response to treatment just a fuzzy image so got to wait till 23rd for another mri scan 

    had a call from my nurse Von Monday telling me that the tumour and one nod that was involved had be obliterated and go and that the MDT team are 99.9 airing on the side of radiotherapy damage is the fuzzy image 

    here’s hoping keep up the good work and good luck mate cheers Andy 

  • That should read go and have a good xmas

  • Hi John what a great post to end the year on for you, what a journey of determination and what hope for others. I know what you mean about being mentally strong.

    great your doing so  well and let's hope we all have a great 2020 and in the best possible health.

    best wishes to you and your good wife as we see out the eventful 2019 xxx

  • Hi John what a lovely post it's great to hear you are doing so well & your positivity shines through , I had my op a day after yours . I wish you well and hope you carry on healing and riding that bike. You have spurred me on to try and get back in the pool !! if I'm allowed to!

    Lots of love Peacock62 xxx 

  • FormerMember
    FormerMember in reply to Peacock62

    hi Peacock62 thanks for message, hope you are getting stronger and fitter,and if i have spurred you on to get back in the pool, then that's fantastic, wishing you all the best , cheers john.xx

  • Thank you so much for this post . Great to see you doing so well now but also really insightful and real for others following in your footsteps . I think it will be very helpful indeed .

    Your return to cycling so soon is amazing . 

    What’s your cycling challenge for this year ?

    take care ,

     Court 

    Helpline Number 0808 808 0000

  • FormerMember
    FormerMember in reply to court

    Hi Court, as long as the big C gives me a break I will be targeting the Manchester to Blackpool charity cycle ride, I think it's about sixty five miles, take care cheers John.xx

  • Sounds great and a good distance .

    I have not cycled properly for years . In the past I managed to cycle the Outer Hebrides with my mum . The hills in Harris were a challenge but beautiful. I always thought I would get back to it but it’s only been the odd small cycle and in recent years nothing at all . 
     
    All the very best with your cycle and here’s to good health for 2020 . 

    take care ,

     Court 

    Helpline Number 0808 808 0000