Well after 18 months of relatively good health and no obvious symptoms,in the summer dad started having his first as he called it running to the loo..He has taken to wearing his tenas ,has over the last two months gradually stopped going out for fear of getting caught out,stopped driving as couldent get comfy and admits his self not fully concetrating.Appetite is extremely poor can only eat very small portions and co tinues to get more limited depends what he fancies .He is managing to clean up after himself if gets caught, but is getting weaker and will obviuosly this self care will decline.Lives on his own ,gives us his shopping lists and errands etc My eldest daughter says what will grandad do when hes bed ridden and even if carers are in an out there not going to be there nessacerely when he needs them .Dad was adamant at the beginning he wants to stay at home .He so far has dealt with things as they have come up which I said we will deal as it happens.He has said this week hes ringing his lady to get a bed downstairs ..Sorry for the ramble ,I know you brave lot are all different and there are no quick fixes but just that one person may read this and understand means the world .x
Oh your poor dad . He has done incredibly well remaining independent. Sad to hear how much he is struggling and I totally get how hard it is to see a loved one becoming more dependent.
Some of the care teams are pretty amazing . My neighbour had a dedicated team who made meals , showered him etc but if he had an accident he called them and they had a fill in team who responded right away on top of the normal care team . I think it might depend on the area and care package but it was pretty extensive. They never stayed long but it took a lot of the pressure off me . He had not active family involvement and lived alone . We were it .
Getting the bed access sorted was a bonus as it stopped all his energy being used on this one task . We also got an accessible shower put in for the same reasons . He selected not to put but the care team did reduce social isolation .
I am also thinking of you as I can hear your heart is breaking . We are here to support you through this so please lean on us .
take care ,
Court
Helpline Number 0808 808 0000
Thankfully dads bathroom is down stairs and he had a big shower put in years ago .Ita good to hear there are companies that offer that emergency call out.
We have a key safe ready to install when he needs one .
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007