Hi everyone!
Well, I am still around, despite a couple of months silence. I've been struggling a fair bit. I've been having ever increasing fatigue, worse than any I have ever known, and as I have had chronic fatigue since my mid-teens, I know whereof I speak. Add into that growing systemic pain, increasing attacks of stomach upsets that are spookily similar to my symptoms this time last year, and I have been getting pretty worried. I have had tests done, and the fatigue could be down to folate-relate anemia.
This is an example of how life likes to play annoying games. My folate levels are very low, but the reason for this is that most of the folate-rich foods I used to eat, such as pulses, green veg, fresh fruit, and so forth... well, they all make my insides try to turn inside out still, as my guts are still healing up. So, I have been advised to avoid them. And am now being advised to eat more folate rich foods. So, I am damned if I do, and damned if I don't. I'll look into supplements, but they are never as effective as actual proper food. What fun!
I'm seeing the surgical team for my one year follow up at the start of December. I shall see what they have to say.
Additionally, my weight has ballooned rapidly. It may be my hypothyroidism is getting worse, or it could be any number of things. Again, this is under investigation. But I am not imagining things, and I am definitely feeling worse now compared to six months ago, which is definitely not reassuring.
Also, I lied. There is nothing in here about bears. Sorry!
Robin.
Hi Court. Yes I think an update thread would be a really good idea. Somebody had posted about having a bad reaction to chemo and that had made me think of Robin. It would also be good to hear how everyone is doing at their various stages of treatment especially for some of the newer members
Take care
Karen x
ps and I don’t mind you calling me Funny Karen 
