mind in overdrive.

  • 5 replies
  • 126 subscribers
  • 2388 views

I have just finished my 25 sessions of Chemo/radiotherapy, have to wait six weeks for MRI Scan and CT Scan.

I must admit, you need that time to recover from the radiotherapy burns and other internal issues but I'm getting there and trying to keep positive every day.

But as you do, you go from one issue to another in your head.

I had a call last night giving me dates for my 6 week Scans MRI & CT. So now I'm worrying once I have had my scans how soon will the operation be after that. Assuming they are happy with the scans.

  • Hi JulieH247 you are almost at the same point as my husband he finished his radiotherapy last Tue 4/6/19 he is now waiting for ct MRi but he has been told 8 to 10 weeks before he will have those and he hasn't been given a date.

    try and stay positive you have got this far, I know it's easy for me to say I'm not the patient, my husband is trying to do the same and stay positive.

    do you have anything nice planned that you can look forward too? We were hoping for better weather as I'm sure lots of people were too!

    we are hoping to have a holiday and try to get some kind of normal in these few weeks.

    there are a couple of others on this forum at more or less same stage, just finished treatment and waiting. It's good to post on here I find as good community support.

    trying to keep busy but gentle on self too, some treats in order as been long five weeks.

    look after you and take care xxxx

  • FormerMember
    FormerMember

    Hi Julie,glad you have got your treatment done and dusted, l am afraid that worrying just becomes part of your life, it does get slightly easier as your journey continues, but I am sure even people that are years down the road are never completely free from worry, I just try and enjoy each day as it comes,wishing you all the best for the future,. Cheers. John.  XXX.

  • Hi 

    I haven’t got anything planned, we are busy at work.

    maybe talk about it when I get home, I’m still struggling with radiotherapy burns, getting slightly better each day though

    Love and prayers to you
    Julie
  • FormerMember
    FormerMember

    Usually anything from two weeks to a month, depends on your particular case.

    And yes it is tough going from radio/chemo to then waiting.

    The way I kept calm was understanding that when the MDT team meet, the decision is made. I have done my bit, now it's their turn. I tried to give each department/team at each stage the responsibility. I tried not to take on the responsibility myself.

    There's a great quote that goes something like: focus your energy on the things you can change, accept the things that you cannot. This is the route to happiness.

    I know it's a bit blah blah blah heh, but it helped me.

    Very early on I hung off the phrase "everything that is happening to you is supposed to be happening, so relax".

    Talk is cheap, but it's what helped me. I reminded myself of these things at the same point you are at. And there are some great people on here that are at this same point right now and hold this kind of thinking too.

    I hope it's some comfort. But it's ok to feel uncomfortable too - I was nowhere near the Zen I make out haha, but these little things helped lessen the stress.

    I am a year since my surgery, you'll be here too, ready to spread the word Slight smile

  • Hi Julie

    I too finished chemoradiation yesterday and now have the wait for scans and results  . I know how you are feeling . I plan to go back to work in a weeks time and just try and carry on with normal things . On the bright side of things we might get a bit of a summer  to enjoy before the next round of appointments Sun with face

    Love Peacock62 xxx