Newly diagnosed, awaiting post scan appointment.

My daughter was diagnosed recently and we were in the same position as you waiting for scan results and a meeting with the surgeon , it’s absolutely the worst part of the whole thing , I have never been as scared in my whole life . I didn’t sleep for the first couple of weeks and my imagination was running riot . The waiting is the absolute worst , I think everyone on here will tell you that . Her ct was thankfully clear and We’re now waiting for her surgery which is scheduled for June 11th . We still have a long road ahead and no doubt will wait anxiously for results after her surgery. I’ve found that the only way I can  get through it is to deal with what I know now and try not to think too far ahead . I’ve found this site a huge support , it’s so helpful to talk to people going through similar experiences . I hope all goes well for you , try to take it one step at a time and remember there’s always someone here to talk to . 

You are absolutely right .. the waiting for results and the consultant meeting is the worse !!! My mum sits there eyes tightly shut murmuring  it’s so hard but as you say we get through it one step at a time ... lots of love Annie xxx 

Hi and welcome to the board.

Yes that is exactly how we all feel - it even has its own word - scanxiety! The time now between scans, results and meetings is very stressful but once you’ve had your meeting with the surgeon and there is a plan in place then things will feel a little bit better.

Bowel Cancer is very treatable nowadays especially if caught early and there are lots of success stories on here which you can read about by clicking on people’s names and going to their profile pages. I think maggiel had cancer of the caecum and is doing really well.

So my main advice for now would be do not google - the information is out of date and downright scary in places. The MDT will discuss your scan results and decide on a course of treatment and then things will start to move quite quickly.

Please do not feel lonely- Support at home is absolutely vital but sometimes you need to speak to people who have been in the same boat and that’s where this board comes in. Feel free to ask anything you want - there is nothing too silly or embarrassing.

Take care and let us know how you get on

Karen x

Thank you for responding. It’s my daughter and closest friend who come to my appointments. I want and need them there but am very sad to see them anxious and worrying about me. Wishing you and your daughter all the best, Gress.

Many thanks for your response, it makes me feel reassured for some reason. No, I’m not googling as it would be like opening a can of worms. Thank you, Gress 

Hi Gress

Totally empathise with your feelings. I found the waiting for scan results and appointments a very anxious time and your mind runs away with what you think may happen. It is an emotional roller coaster and you are definitely not alone in your feelings. I found the community and information helpful to support me through this awful time. I also got in touch with local cancer support and spoke with a counsellor who was brilliant. I've got a supportive family but it was good to speak with someone who wasn't involved and I didn't have to worry about upsetting them with how I was feeling. I wish you luck with your appointment when it comes.

Best wishes

N

Many thanks for your response Nicky, there is a Maggie’s Centre not far from my home & I will visit.

i got a telephone call this evening to say that I have an appointment with my surgeon on Monday. Now my mind is racing overtime!!

However it is a relief to have the appointment, every step makes it all the more scary & real.  It does make a difference to chat on this site. It makes me feel that the cancer can be managed.

Regards, Gress

At least you don't have long to wait now. Wish you well with your appointment tomorrow. 

N

Many thanks. I seem to have spent the last two days with tears trickling out!!

G