It's been a long journey so far for my partner. Originally diagnosed with stage 3 bowel cancer back in 2015. He had an OP and chemo in 2016. All well until last year when it was found to have returned in the same place. He had salvage surgery and referred for hipec. He was turned down for this and in the wait inbetween the cancer regrew in exactly the same place with a few peritenal mets. He just completed 6 months of folfox. The first 6 sessions showed reduction in all mets. The second 6 showed no new growth and considered stable with a CEA level of 2 but remains inoperable. Now everything seems to have stopped. A vague promise over the phone of a scan and appointment in 3 months but he has had to chase every single appointment. No bloods booked. What does he do in the meantime if new symptoms appear? At the moment we are grateful he's in good health and just returned back to full time work but we feel in limbo. He's never been restaged, he has not been told of any further treatment he may be facing if any, whether the eventual aim is to cure or prolong. Hes seen 5 different consultants in 6 appointments. The last one to discharge him from current care was over the phone so no opportunity really for us to both ask questions. So what happens next? Is it normal to be told you will be seen in 3 months when he knows he still has the cancer and not knowing if its spreading? We feel like we should be enjoying the break but not when we haven't been given much information about going forward. Would feel so much better knowing there was a plan
