Hi all,
Got my prognosis 6 months ago, not good news I'm afraid, 6 - 18 months and that's only if the chemo has works. I get results 15th may 2019.
So I've had the radio and chemo but I can still feel the tumour in my spine, pain is still there but getting a little bit fed up with " oh you're looking well, thought you'd be worse " . I may not look like I'm dying but I know how my body feels and it's feels dreadful. The pain is non stop despite being on very strong pain killers
Some days I just want to close my eyes and fade away, I have accepted my fate and the extension of my life has given me time to arrange everything but at the same time I am angry.
I have my fourth grandchild due in August, hoping I'll still be around to welcome her into this world. Taking all my family away to spain for one last big family holiday, really looking forward to it and so are the kids.
I think my main point is, we gave been dealt this hand and all we can do is deal with it the best we can. Not saying it's easy but there is no other choice .
Regards
Ken.
Hi Ken ,
I hope you get to welcome that little granddaughter into the world too . Your holiday sounds wonderful and I hope it’s very special for all .
I can understand why you would get fed up listening to comments like that . I can’t get my head around that . But it has never failed to amaze me some of the comments my mum has endured . Possibly in the absence of something meaningful to say , who knows .
Just a thought but have you got a specialist anaesthetist at a pain clinic managing your situation ? They can be quite helpful with breakthrough pain .
All the very best with your upcoming scan and for your post .
take care,
Court
Helpline Number 0808 808 0000
, so sorry to hear of your poor prognosis. Your determination to meet your new granddaughter is likely to get you through the summer. Meanwhile, have a wonderful holiday. Best of luck.
Onwards and flatwards (don't do hills) and keep walking if you can!
Thank you, glad for your support, I know we're all or most of us are in the same boat .
I just cannot see any future past the end of this year but hey ho I'm sure god has a plan for me.
Regards
Ken
Hi Court,
I'm sure I'll still be here for Pandora's arrival but what really gets to me is the fact I'm not going to see any of my grandchildren grow up. I lost my wife a few years ago and my grandchildren really brighten my life. I have everything to live for but it is not to be.
Apparently I have one more level up for the pain killer I am on then I'll have to go onto morphine base pain killers. The pain never leaves me not even as I type these words, makes staying positive very hard.
Regards
Ken.
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