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Hi everyone, i was diagnosed with a very large sacral chordoma in Dec 2019. in Feb 2020 I had 19 hour operation over a 30 hour period.I then had 2 months stay in RNOH Stanmore. I now have permanent stoma, need to self catheterise and loss of sexual...
At a recent CT scan I had (5 years NOD Ovarian cancer ) arranged because I have been having hip pain which is getting worse my consultant asked if in previous scans a lesion on my hip had been commented on I said it hadn’t, only arthritis in my thoracic...
Just wanted to reach out and say hello. I was diagnosed with chondrosarcoma last October and in January this year had a Proximal femoral replacement and am now in recovery and rehabilitation. Wondering if there is anyone else in the community going through...
Having bone cancer really does suck! My 18 year old daughter doesn’t get it and my 16 year old son is sitting his GCSE’s. You try protect your kids from the anxiety and pain but it sometimes seems like a losing battle. Advice please!
Hi all. I am not really new on here as I used the forum in 2017 when I had Breast Cancer fast forward 5 years I now have Bone Cancer, I am having Oral Chemo for life as I am almost 77. It was a terrible shock but as time goes by it does get a little easier...
Here I am at 4am unable to sleep. Mind working over time once again. I've been having bsxk pain for quite some time and more recently, Ive been experiencing chronic pain in my shoulder. I thought it was a shoulder injury and after a few days of the...
Hi. My son had osteosarcoma when he was 14. He had chemotherapy and surgery on his left leg to remove the tumour including knee cap and large amount of bone on either side. He got better. Life returned to normal. He went to college and went onto university...
Hi I'm new here so this is my 1st post. Not sure what I'm doing If I get a reply then I'll know I've done something right. I was diagnosed July 2020. I was told I would never walk again or drive and certainly not use toilet. Over the last 19 months...
Hello, Thought I would take the plunge and join the group. I have been living with bone cancer now for over two years. It took approximately 6 months to really get to the bottom of what was going on and I was so debilitated it was very difficult to...
Hi x If you have been diagnosed with hip, pelvis lower back Can I ask please what symptoms you had? Did your Cancer show on an X-ray straight away or did it take a while for diagnosis? Thank you x
