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Hi, my first post following my TURBT on 8th April 2026 where a non-muscle invasive papiliary tumor was removed and mitomycin via a catheter. To be honest my mind has been all over the place since first diagnosed and it has been a real whirlwind and sudden...
Coping with a new ostomy, my husband had his bladder removed on the 16th March, we are struggling to stop leaking from the bags, his stoma is quite low, we are using rings, the longest we've managed to keep one going is 21 hours, any tips appreciated
The next stage in my journey is 6 weeks of Mitomycin Chemotherapy. I was told to expect a call to arrange this since my post MTD meeting on 4th February. The problem I have is I go away on holiday on 10th April, which is now 7 weeks away, I have been...
Well as some of you may know I had a torrid time with my catheter in after my last tumour resections, during the recovery time I lost between and stone and a stone and half. Barely eating at the time and drinking so much I was hardly ever hungry. So I...
Hi all recently diagnosed with bladder cancer. Had TURP. Now starting my treatment. I so scared of the future. How do I cope
So I’ve been feeling unwell about three months we just thought stubborn uti. I got hot sweats, limited flow in urine output. A very large gross hematoa last week. Pain in flank, back and ovary bladder area. ct scan clear and consultant is now just looking...
I am at the start of my journey. I have yet to spend my one night in hospital to have the tumour removed. What follows on from that I feel will not be good news. I am not expecting miracles but ……..!
Hi everyone im going in to have my bladder removed on Tuesday and the closer it gets the more my brain goes into the what ifs. Ive been trying to distract myself but my brain wont play nice. Im getting a bit stressed out and am looking for anyone with...
Since June last year I have had two rigid cystoscopies and one TULA. My next TULA has. been scheduled for just under eleven weeks from my last one. These three all showed recurrences so I am hoping for 4th time lucky now. Best wishes to you all
Dear folks, I am starting my BCG maintenance [7,8 & 9 doses] on 22nd April. And then there is a gap of 3 months before the second lot [10, 11 & 12] and then a gap of 6 months before the final lot [13, 14 & 15]. I was told that I will not have any more...
