Large cancerous tumour in bladder. CT Scan shows the cancer has spread.

Hello Mack and a warm welcome to this friendly group. I am sure you will get plenty of support here as you go forward. It sounds as though it is early days for you yet but bladder cancer can be treated successfully. The not knowing and uncertainty can be the worst. When you say the CT has identified spread, do you mean outside the bladder? Best wishes.

Yes. At the moment I don’t know all the facts. Perhaps I am over reacting but I sense  myself the spread due to discomfort and pain in other parts of my body that have come about in recent months. I had microscopic blood in my urine for many months but I wasn’t aware anything was wrong. I thought I was just dehydrated when I would notice a change in the urine. It was only when it eventually eeny on for days and days that I took myself to the GP. That’s when I was advised there was a lot of blood in my urine. In being told at the time of the Cystoscopy the tumour was large I knew I had problems. I am going to the Maggie Centre, Western General Edinburgh, tomorrow. I hope speaking with others going through their cancer experience will help me. I am still at the stunned stage. 

Been there done that myself thinking other pains and aches were probbaly related and none of them were in my case. 

Try not to over think things until you know exactly what you are dealing with. Once you have some answers then you will know of other things are related or not. 

Oh and large means very little tbh my first one was classed as large and that was 1cm in size. The grading and how aggressive the cells grow seems to be far more important than the size. 

You will be sent for a a CT scan soon probably with contrast medium as they will automatically check for spread to other areas and lymph nodes.

Standard checks like that come in fairly quickly succession once the ball has started to roll downhill. 

Hi Mack,Welcome to the group.You will get support and advice on here.It’s a lot to take in when first diagnosed.If you can try not to think too far ahead.Step by step is easier mentally though it is difficult.
Best wishes Jane 

Thank-you

Thank-you everyone. I wasn’t sure how messages worked. Whether you all see my replies or if only the person I reply to did.