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I will be having my bladder removed on the 1st of September I am so anxious and worried about everything. I’m finding it difficult to stop crying I have lots of help from the urology nurses but still I am absolutely dreading Thursday it suddenly hit me...
It seems quite a few people on the forum are having to make the decision of whether to have surgery, which is where I am at. Has anyone had success with bcg and mitomycin administration using electric current Emda for 9 weeks, been suggested by Guys hospital...
Hello Everyone, Following my six week course of Mitomycin in June I had my follow up flexible cystoscopy today at a private hospital in Preston all through the NHS. Thank goodness I was given the all clear. My consultant showed me a clear bladder and...
Evening Everyone I had my TURBT with the usual afterwards on Monday 24tb. Is it normal to feel sick to? I came home same day with catheter which I had removed yesterday Everything according to Urology Surgeon went well. They did have to go into...
Any one else have constant back ache with muscle invasive bladder cancer. I have a stent from kidney to bladder, but could also be not as active whilst having chemo so a bit of sciatica!!!! CT scan imminent so hopefully no spread
Hi everyone, We’ve launched our annual survey for 2022! We want to hear what you think about the Online Community. The survey should take around 15 minutes to complete. The survey is anonymous. Please complete our survey here. This survey is designed...
How do you all cope with the waiting ..the not knowing..the uncertainty .. my mental health is awful right now
Hi, my father has had a diagnosis for about 7 months. He's in his 80s and has had 2 resections, but the tumour doesn't look to be removable totally. He also can't have chemotherapy for other medical reasons and radio therapy is being held back as possibly...
Hi, my 90 year old dad was diagnosed with squamous cell bladder cancer in June last year. He had a TRBT and a short course of radiotherapy in September. All was well for nearly 12 months but then some symptoms re emerged and he had another cytoscopy which...
Met with consultant today who said as the grade 3 cancer was there again on second Turbt, I have 2 choices, bladder removal which he wants me to speak to Guys hospital who would do the operation or try BCG. He seemed to be pushing the removal, I can understand...
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