Hi, my father has had a diagnosis for about 7 months. He's in his 80s and has had 2 resections, but the tumour doesn't look to be removable totally. He also can't have chemotherapy for other medical reasons and radio therapy is being held back as possibly the next step when repeated resections are insufficient.
It looks like this is not going to be curable, but will be a matter of extending life. However, that quality of life is so diminished. He is mentally capable and until recently was able to drive himself and be able to care for himself fully. Now he can't drive and is only able to walk short distances.
The biggest problem is he is suffering from huge fatigue, which seems to worsen after each resection. This is partly down to broken sleep as he must go to the toilet every couple of hours at best, but he also has other health issues which may be contributing.
The mental impact of the likely outcome, loss of independence & mobility, as well as the fatigue, is in some ways the most difficult thing to deal with, for him and for us. We know he has every reason to be down and we have no right to expect him to be different. But it is so hard to see him like this and it almost feels like we are dismissive of his difficulties if we try to cheer him up. We try to get him out and about, but this is limited to occasional trips out as he often doesn't feel up to it. We visit daily, but yet he isn't happy to have a care plan set up with outside visitors.
We are trying to support him, but there seems so little we can do.
There probably isn't any silver bullet for this, but just wondered if anyone might want to share their thoughts.
Hi Sweetrio and welcome to the group, although sorry to hear about your father and the limited options. Fatigue is quite common after treatment. Some people have longer lasting effects of the anaesthetic and the frequent urination does not help. Do you know if he is drinking enough. It is important to drink plenty of water during the day and stop about two hours before bedtime. Not drinking enough leads to concentrated and acidic urine which irritates the bladder and gives the feeling of needing to go. I suffered fatigue after my treatment and my GP prescribed some medication which helped. When I had my bouts of fatigue, I just wanted to curl up and didn't want to be disturbed, so let dad rest when he wants, but also try and encourage some form of light exercise which helps. I had radiotherapy and didn't really have any problems with it if your father goes that way. I hope they come up with a plan for him. We have had many members here in their eighties and treatment usually goes on fitness rather than age. I hope all goes well. Best wishes.
I don't know about Marmite, Bovril and breathing, I was thinking more along the lines of Diazepam!! 
