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I just want to first off by saying thank you to everyone in this group, you have provided me with so much support and help these past few months. My mum has had the results from her pet scan and it was confirmed that her cancer IS NOT in her nodes....
Can I just ask how many Turbt procedures you guys have had. After 3 years cancer free hubby's last cystoscopy showed a return of his cancer. He is checked every 6 months. Last time they found a red patch which after Turbt showed inflammation only. So...
My apologies. I know much of this posting is a repeat of earlier ones. Should I have made grammatical errors with this posting please forgive me. It is just after 2am., I can’t sleep but neither am I fully awake. The day after my TURBT (this was the second...
Just returned from my appointment with the Consultant after my recent scan. Bad news I’m afraid. The scan highlighted a tumour in my left kidney almost identical to the one that was discovered in my bladder in 2018.I’m now on the waiting list to undergo...
Have any of you experienced cancer Ghosting? It’s where friends and relatives suddenly disappear when you announce that you have cancer. It’s a recognised syndrome apparently- Google it. I am afraid I have experienced it. It can have a big impact.
Hi All, Today's Guardian announced there is a new urine test for Bladder Cancer which avoids the need for a cystectomy. ("Non-invasive home test for bladder cancer hailed as major breakthrough"). Many of us have discussed this subject before. After...
I had a cystoscopy 7 weeks ago and then a TURBT 4 weeks ago, spending 3 nights in hospital. I had found out quite a lot about possible outcomes and treatments - including from 3 friends who are doctors. Last Friday - six days ago - I went to an appointment...
I will be starting recombinant BCG in 2 weeks. I guess I would like to know if I will be able to go to work the next day. Not a strenuous job, but I want to be sharp as possible. I hear fatigue can be a problem and frequent urination. Any feed back from...
I suffer from radiation cystitis of the bladder, sometimes when I’m about to are after a bowel movement I get extreme bladder cramping. I also have a in dwelling catheter This often passes after about 10 seconds but it can be intense. I take Oxybutynin...
hi I’ve been being treated for bladder cancer since 2017, started with bladder removal, then had a kidney removed when it cropped up again in 2022. Was just starting to think I was over it when I was diagnosed 8 weeks ago with recurrent bladder cancer...
