Hi guys I'm new to this and very anxious. For the past 15 month iv had blood in my urine only a handful of times. When it first happened they checked my uterus, ovaries etc and all was ok (not sure why bladder and kidneys were never checked back then...
Hi everyone, hope you are all coping with the heat, I haven’t been on for a little while , I have been busy with baby grandchildren and a great grandchild.just an update on my results for 2nd TURBT and pleased to say I’m clear ! I am starting BCG treatment...
Hi everyone, new to this forum. I'm caring for my Dad who is 62 and has ureter cancer which has spread to his kidney, liver, lung and spine. He was living in France but we lost my Mum just under a month ago and when I got there it became evident that...
Hello all, I’m new to this group. I had a radical Cystectomy back in Oct last year and I think I’m doing ok. I am reluctant to go out for too long as my bag needs to be emptied every hour and a half to 2 hours which is quite restricting. I am going to...
Hi to any keen golfers on here. I am awaiting my cystectomy and urostomy in mid January. I am wondering about the impact my changed circumstances will have on my golf? I am Handicap Secretary for a Golf Society, plus have other golf buddies, so often...
We are currently caring for my grandad who’s been diagnosed with bladder cancer that’s metastasised to his bones, lungs and also l4 vertebrae in his spine. He’s now palliative care but we still don’t know what to expect because no one’s telling us anything...
Hi My husband was diagnosed with bladder cancer in December 2018. He had surgery and ended up with bladder removal and a stoma. He had chemo and was on an immunotherapy trial. All his treatment ended in August 2020. In June 2022 he had a seizure and was...
Late in February I was diagnosed with blood in my urine CT scan and a Flexible cystoctomy later I was informed I had bladder cancer .on the 5th of March I was admitted for a TURBT 10 days later I was recalled to the hospital to be told that the cancer...
Hello all, I am 9 months in after my Cystectomy and doing well but this last week have been experiencing some pain inside next to my Stoma. Anyone else had this sort of issue?
Hi all, so I hadn't posted in a while. I'm just over 8 weeks post operative from a radical urostomy. I've had my histology results and thank the lord above I my cancer hadn't spread to the lymph nodes & my surgeon said I'm currently in remission. To sat...
