Dear Community Group Members This week following a TURBT I was informed that they had found a (1.2cm) Tumour originally they had thought it was in the inner lining but during the TURBT had discovered some attached to the muscle. After the TURBT I...
Hello, I am looking for BC-mates :) who have done the GALEAS Bladder test (only with a urine sample)? What was your experience and outcomes? Also, I am looking for cystoscopy supersensitive, like myself, BC-mates: what was their experience with a...
I have recently had TURBT operation to remove a large necrotic bladder tumour, they only managed to remove 80% of the tumour. It is muscle invasive and has spread to 2 lymph nodes near the badder and possibly my lungs. I had to come home with a catheter...
Hi I joined this forum when I got diagnosed with bladder cancer the beginning of the year. I'm due to have cystectomy surgery on Thursday. I'm now getting very nervous and anxious about it.
I’ve just had a TURBT last week and I’m waiting for the biopsies. I have been feeling very depressed and low. This time last year I was working and full of life and now I’m on disability and in pain every day. I’m getting to the point where I don’t think...
Hi not sure if this is where I should be posting because I am not diagnosed with bladder cancer. However I had an situation in June of 2023 where I had a panic attack was prescribed anxiety medication then in July 2023 had a month of spotting was prescribed...
i have add low grade superficial bladder for the last 4 years it came back after 15 months then 15 months again then 4 months. they decided to give me bcg bladder washes for 6 weeks which i add reaction to then went for my check up and they said some...
Hi I’m new here and quite anxious about this whole experience. I had an Cystoscopy end of January after losing a fair amount of blood in urine and with no UTI infection. Was told that I had suspicious lesions on bladder wall and would need a TURBT where...
Hello I was diagnosed as having Non Muscle Invasive Bladder Cancer last Monday and I am still in shock! it’s taken me this long to even write it here let along tell people. It’s like if I don’t mention it or saying anything to anyone it can’t be real...
Hi everyone, only just joined but this forum was a huge help and relief 3 years ago when I was first diagnosed with non invasive bladder cancer. After bcg and nearly 3 years in the clear, a regular cysto a couple of months ago showed up something tiny...
