Newly diagnosed

Hi,

The initial diagnosis is always a shock and takes a bit of getting used to, so your mind is probably at sixes and sevens, but it does get easier. We are a very supportive group, so don't be afraid to ask questions, no matter how silly they may seem, or just to vent your spleen.

Bladder Cancer has a high rate of successful treatment and there are many different treatments. I found I got fed up of telling people, so I asked my nearest and dearest to talk to people I knew, if it was necessary. Give yourself some "me" time and put yourself at the centre for s bit.

Hi CaPatient,Welcome to the group.It’s a shock to get a diagnosis but once you have had the TURBT and have a treatment plan it will be easier.This is a supportive group and we are all here to help and listen.Best wishes Jane 

Hi ianw,

Thankyou so much for replying.

I do have some good family and friends and I have taken full advantage of the sun and fresh air in the last week which has helped.

It’s the wait before the TURBT I struggle with as I feel that ‘it’ is still in my body for a while longer before it’s removed next week. I think I will be able to move forward once it’s removed.

Best wishes

Hi winkers60

Many thanks for your reply.

I agree that once I have the TURBT I will be able to move on.  I think about this morning, noon and night. 

Best wishes

These early days of diagnosis most people find the hardest.What you are feeling is common you just want the cancer out.It does got easier once you know what treatment you will be having.You can focus on getting better.Keep posting and ask any questions.I’m glad you have support,it will help.We are all here to help you through too.Best wishes Jane 

Hi CaPatient,

I had my first TURBT in March to remove mine. It all went well, 

just had TURBT #2 and I’m currently awaiting the results.

this group is amazing, ask anything and someone will get you an answer/ 

advice/ opinion.

the waiting for treatment/ results ect is the worse part. But as the others have said, once you get a plan going you will feel better.

Nigel

Good luck, I remember when I was first told about my non invasive bladder cancer, it really hits hard and you're trying to stay focussed on what they are saying to you. My ridiculous first question was if I would see another xmas? The consultant said the most reassurring thing, consider it an inconveniece, nothing more. And it seems he was basically correct.

Fortunately there is so much on the internet, with forums such as these, that will explain exactly what happens with a turbt.

Hi Andy, my first question was the same. I asked if it was life threatening.. he said no not at this stage. 
Nigel

you know, at the age of 54 the turbt op was the first time I had gone into hospital for anything other than the initial cysto and the pre op mularkey... i almost enjoyed the experience in a way,  One minute you're being humoured by the aneasthetist, the  next you're waking up with it all sorted and nurses on hand with drinks and food.

That’s exactly how my first went I’m having my 2nd tomorrow morning I got diagnosed in February